What is Hypoparathyroidism
In medicine (endocrinology), hypoparathyroidism is decreased function of the parathyroid glands, leading to decreased levels of parathyroid hormone (PTH). The consequence, hypocalc...
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Parathyroid Hormone for Hypoparathyroidism
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Tell us about your personal experience with Parathyroid Hormone as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
Posted on 10/12/06, 08:10 am |
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Oh Doug....
If only I was in a position to answer this question.... It is not yet given for HPTH sufferers here in the UK (the 1-34 variety) yet - only for end stage osteoporosis sufferers. My Consultant has grave doubts about the 1-34 variety though due to its short half life but feels the 1-184 with it's much longer half life is much better. This (the 1-184) is supposedly to be made available to HPTH sufferers soonish though so am keeping my fingers crossed. Some HPTH people I know on the 1-34 say it is wonderful for clearing the foggy head that comes with HPTH and gives the person a lot more energy but these people have only been on it a short while and my consultant says it's for further down the line that the real problems start on the 1-34. In his words "If you think you have a poor quality of life now, be a subject in a medical study and go on this drug and you will know what a low quality of life really is." Tusti 
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Hi
I am in the UK, and have to have my blood done every 3 weeks for the rest of my life. I am very very poorly with hypoparathyroidism and am frequently admitted to hospital.
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Dear Pink,
What caused your HPTH? Love+Light, Tusti XX
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The Doctors don't know - all I do know is that my Consultant has told me that I have it much more severe than most people
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