What is Hypermobile Syndrome
Hypermobility syndrome (known by a variety of other names, including Benign Joint Hypermobility Syndrome and HMS) is generally considered to comprise hypermobility together with ot...
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EXTREME skin sensitivity.. ANOTHER symptom????
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Recently I found out from a rheumatologist that a symptom I've had for years MAY be related to BHJS (Benign Hypermobility Joint Syndrome). For years my skin has been increasingly sensitive to pressure. It has gotten so much worse lately and it's really worrying me. I cannot put lotion on my back because that little bit of pressure on my ribs causes extreme pain, like I've just been punched. The pain lasts for about 2 mintues, then goes away and there is never a bruise or any lasting pain. This sensitivity is ALL over my body. The worst places are my ribs, abdomen, inner knees, thigs and upper arms. The pain IS NOT in the joints at all, but more in the muscles and tissue. If I bump something very slightly the pain will feel like I had just run into something at full force. It's hard to explain but it feels like there is an extremely tender bruise, yet the pain never lasts more than a few minutes. Also, the pain is only caused by pressure to my skin and muscles. It doesn't have to be strong pressure, but a light touch doesn't usually produce this symptom. Sometimes I don't even notice that I've bumped into something until I feel the pain. I recently bumped my calf on my nephew's toy and didn't even notice that I had touched anything until I felt that too common feeling of pain on my leg.
Does anyone else have this weird symptom or know of someone who does? Do you think this is a symptom of the hypermobility or of something else? Any suggestions on what to do for this problem?? Thank you in advance for your help! Posted on 05/30/09, 03:05 am |
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Good morning ~smiles~
I can understand very well the pains you are describing. I have had troubles since I was a child with hypermobility, and more recently with the pains in the muscles through out my body. In talking with my new doctor, he did a bit of a 'pressure test' on me. He started pushing on various points around my body, hurt like hades I must say. Turns out that not only do I have hypermobility, I have Fibromyalgia as well. That might be something to talk with your doctors about as there are various treatments that can make it less painful and easier to live with ~smiles~ 
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i totally know how that is! not only am i allergic to metal (i get huge weeping blisters if i even hold staples!), allergic to fragrance and sun burn regardless of sunblock i have pain like that too! ive heard that fibro and hms generally go hand in hand. i havent been diagnosed with fibro, but i know on my bad pain days, it hurts for my husband to even lay his hand on my leg. just him putting his hand there feels like hes pressing down on a bruise.
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I was wrongly diagnosed with Fibro before HMS and the doctor didn't even touch me!!!!
My hips are the worst. if I just poke my hip or the surrounding area gently it feels all bruised but there is no bruise. From what I understand HMS is a sensitivity to the nervous system where the pain/touch is amplified. I am also sensitive to sunlight/any bright lights and noise (especially high pitched!) xsparkyx
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My pain started 3 years ago. And yes, I understand all too well. The pain was only in my knees, some days could not walk up the stairs to my apartment. 3 flights! A few months later, it became my left shoulder. I still sleep with 4 pillows for my arm, and one for my neck.
I have tired those contour pillows but I have a prolapsed disc as well so they hurt my head more. I had a body pillow for a time, but they are too soft to help my knees. Even folding it in half did not work. I was only diagnosed last summer but have been dealing with HMS for a few more than that. And now have FMS as well. I cannot have my husband even touching my arm, it hurts too much. Hugs!
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I think I have a partial explanation. Skin gets thinner with age, after some point in adulthood, I think. I'm not 100% sure, but I believe that with EDS, the skin is thinner than normal from the start. If so, that likely also applies to Hypermobile Syndrome. I've noticed I burn more easily than I did a few years ago. Recently, I got a rash from a bandage. Maybe there was something unusual on it, or maybe more of the goo is getting through my skin. It could also be that the skin on that part of the body is thinner than elsewhere. Like most of you, I'm sure I'll get another chance to see what happens, needing more medical procedures of course.
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Hello! I have not been on since December but wanted to add my two cents... I only get pain to the touch when I have been on my feet too long...the blood pooling adds such pressure...when I hike my feet start to hurt so bad it feels like I am walking on stumps. I remember when I was little I would jump down from somewhere and I would have extreme pins and needles throughout my legs and pain. I wasn't diagnosed until I was 35...
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I agree with NuSoul, I was also recently diagnosed with fibromyalgia and it sort of fit all my weird symptoms in like a puzzle. One of my symptoms is skin sensitivity. My physical therapist says that it's not just a skin sensitivity it is a soft tissue sensitivity. Mine is not as bad as your sounds but when he does soft tissue massage (nothing like a normal massage) it helps my overall pain level go down. Might look into it. I have also found acupuncture to be helpful for some sensitivity and nerve issues.
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