Hypermobile Syndrome Support Group

i cant tell you for definate but i dont think that everyone with HMS ends up in a chair. From wot i understand the more times you damage a joint the less well it heals. Also the more strain a joint is under the more chance of damage to it.

I'm in a wheelchair and i think that's coz my hips and back were treated roughly so much when i was younger (thro abuse) and now the docs dont seem to think there's really any chance they'l recover. I'v also been told that the way i use my arms to get around will probably meen I'l get too much damage in them too.
I'v spoken to other people with HMS tho who arent in chairs (at least not unless they dislocate or sublux a leg or back joint)

the people who seem to end up with the worst damage earlier in life more often seem to be people who have put their hyper mobile joints under more strain (like making the most of their 'flexability' by doing things like ballet, gymnastics or doing 'party tricks' with wot their body can do)
It also seems like there can be degrees of hypermobility so those who are just 'pretty double jointed' are likely to have less problems from it than someone whos joints slip almost every time they move.

can i ask if you have certain joints that seem to be more effected than others? Also do you have a lot of dislocations/subluxions (subluxions are when joints slip out of place but go back in on their own rather than needing to be set back manualy) of your joints?

I do find myself worrying about the future too sometimes so i understand a bit how you'r feeling.
iv had times when Iv asked my partner over n over 'are you sure it wont be too tough if you have to look after me a lot in the future...are you sure you dont mind marrying into that kinda future?'
usually I try to just make the most of wot i can do now most the time tho

im not the greatest speller either but I hope you can understand wot im saying well enuf. I dont know if it's helpful or not (n i may be wrong coz i havent had much support with this up til now). if anyone knows better please corect me.

I read that too and it scared the bejesus outta me. I've have now been told by a proffesional that it could happen however it is all in our hands. If we keep the muscles around the joints in peek physical condition then there is no reason why we would end up in a chair. Please don't panic, just go swimming twice a week or something and you should be fine. hugs to you and your weird joints lol, x

I don't think that every one who has hMS will end up in a wheel chair but some days it is tempting like today, the weather is cruddy and i am aching all over. mostly knees and left hip it slips out often but it will go back by itself in a bit.

Take Care all

i have HMS and i have never needed to use a wheelchair, my knees are the big problem. I just assume it would depend on the severity of the problem.

My mum was told at the same time as me she has HMS, cos the doctors wanted to see if it anyone else in the family has it. When she was younger she had problems with her knees and was told by the time shes 40 shel be wheelchair bound..shes not 40 yet, but not far off it and shes still moving around and fine.


If youve got worries see you consulatant, they can maybe tell you a bit more.