What is Hydrocephalus
Hydrocephalus is an abnormal accumulation of cerebrospinal fluid in the ventricles of the brain. This increase in intracranial volume results in elevated intracranial pressure and ...
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Anyone here diagnosed as a teen?
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Hi everyone,
I'm new here. I'm 22 years old, and have an ETV. My last surgery was last year, and was a revision ETV, since the one from 2004 failed. I was hoping I could find some support and maybe answers here. Was anyone here diagnosed as a teenager or young adult? My neurologist calls it SHYMA (Syndrome of Hydrocephalus in Young and Middle-aged Adults), a term he coined. I was diagnosed when I was 17, but they think it may have been developing since I was very young, or possibly since birth. Just wondering if there's anyone else like me out there. Amber Posted on 11/07/09, 09:11 pm |
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I was diagnosed at 13 months old and have had ten surgeries between the ages of 13 months and 18 years old, eight were shunt related. 
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Hi, I was diagnosed at 51 years old,had an etv,still working!!
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I was diagnosed at 1 week old due to a congenital brain bleed... my hydrocephalus is considered congenital since it was caused by a medical problem present at birth. I was also born 3 months early, weighed 1.5 pounds, and was 8 inches long.
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i was diagnosed at 6 weeks old due to a brain hemorrhage...i have had to many revisions to count but I've only recently in June had my first full replacement after many problems which i am still working on over coming.
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