What is Hydrocephalus
Hydrocephalus is an abnormal accumulation of cerebrospinal fluid in the ventricles of the brain. This increase in intracranial volume results in elevated intracranial pressure and ...
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make hydro more reconized like breast canacer
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I would like to try to make hydro more reconized like breast cancer is now.....where people know what it is an understand it more an not think your just makin it up.....I got to high school an I have some problems with kids who dont understand it an hit me in the head with things specialy right when I get back from surgey. When I tell them whats up they laugh at me an just say im lieing. Im starting to get tired of being a lier an want this to be reconized everywhere so I was hopin everyone could help me out with this.
ashlee Posted on 10/30/09, 09:10 pm |
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Maybe you could get a few friends who understand, and a teacher or counselor, and start an awareness group in your school. It's not much, but it's a start. 
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Children and namly teenagers can be very cruel and they just don't understand what we face a daily basis. Yes we appear to be functioning normally but, our brains are constantly fighting a battle with our CSF. We do get tired,we do get headaches that leave us unable to function. Those who haven't been there really don't understand it. I used to go to school after having surgeries and complications and it was hard. But, I just dealt with it and covered things up the best that I could. My teacher's, school nurses, and a few friends knew, some were supportive others just didn't get it. Now at 22 it really doesn't matter who understands it. Those who need to know do know, and those who don't, don't. I live my life day by day one step at a time. Honestly don't care what people say about me or my health. I know the truth and what goes on with it and that's all that will ever matter. My advice would be to ignore the BS and explain it those closest to you.
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WOW YOU ARE GOING THRU A LOT. WHEN DO U FINISH HIGH SCHOOL. YOU ARE A MUCH BETTER PERSON THEN ALL OF THOSE KIDS WHO HIT YOU OR THINGK U CRAZY CUS U HAVE HYDRO. lET THEM KNOW YOU DONT CARE WHAT THEY THINK. i THINK U SHOULD ASK THE SCHOOL ADMINISTRATOR IF YOU CAN SPPEK BRIEFLY ABOUT HYDRO AT YOUR NEXT ASSEMBLY TO INFORM PEOPLE ABOUT IT. aND MAYBE YOUR DOC COULD COME TO. WOULDNT THAT BE GOOD TO SPREAD THE WORD ABOUT HYDRO. MAYBE THEN THEY WOULD LEAVE YOU ALONE AND OTHER KIDS WOOULD COME CLEAN AND U NEVER KNOW MORE AT UR SCHOOL MAY HAVE HYDRO TOOOOOOOOOOOO TAKE CARE AND HANG IN THERE............. FROM A MOTHER WHO JUST FOUND OUT MY SON WHO WAS A PREEMIE AND WEIGHED 3LB10OZ HAS HYDRO OUR FIRST MRI IS THURSDAY MAY GOOD BLESS YOU I WILL PRAY 4 U
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Thankyou I will try that and see if they would let me talk my next peprally or somethen.
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Good luck with the kids at school. Teens can be so insensitive but can also be so passionate and helpful when motivated. Hopefully the latter will be the case.
Good luck, Tom
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