What is Huntingtons Disease
Huntington's disease (HD), formerly known as Huntington's chorea, is a rare inherited genetic disorder characterized by abnormal body movements called chorea, and a reduction of va...
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Not the best coping strategy
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I have never dealt with my mom's HD in a healthy way. I've just denied it, ignored it, hated it, and been angry about it. Which in turn causes me to be snippy to my mom. I know I do it, and I hate it. My dad does it sometimes too...and it makes me really sad.
I've recently noticed that she has been having more trouble with her balance lately... I'll look over and she's teetering back and forth on one leg, sort of flailing about. And my first thought is "what's wrong with you?" and I get irritated, when I know perfectly well what is going on. She also has started to drop things more and I snap at her to "quit playing with it" which sometimes she is just being clumsy but I also know that it's partly her HD. I'm currently taking a psychology course that is really biology based, Brain and Behavior, and I just learned all about the brain and what the different structures do. It makes it even harder to ignore, when the brain structures that are being affected are right there in front of you. It sort of forces me to acknowledge the Huntington's. I know I should but I don't want to because I know there is nothing I can do to keep her from getting worse and I just feel SO helpless... I guess I need to own up to it huh? It's not going to magically disappear or get better and I'm only making it harder on my mom and myself, and she needs and deserves my support. Posted on 10/11/09, 03:10 am |
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Erin my dead I am in exactly the same boat. My dad has HD and sounds just like your mom!! Its just so hard because they aren't the way you remember them, so when they are struggling it takes an extra deep breath to remember as frustrated as we are with them, god how bad they must feel! To go from being so competent, to needing help with doing up a zipper. Personally I won't get tested until I decide to start a family. Hopefully it comes back negative, but if it is positive I wont live my life any differently (except maybe inveto, hopefully I can afford it :)). No matter how bad things are I always remind myself how lucky I am that he is still with us. 
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