What is Huntingtons Disease
Huntington's disease (HD), formerly known as Huntington's chorea, is a rare inherited genetic disorder characterized by abnormal body movements called chorea, and a reduction of va...
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I feel like there is something wrong with my brain
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I am struggling with the fact that I trully believe that my mother has Hunginton's Disease. She won't get checked. My uncle was diagnosed last year, so I know she has a 50% possibility of having it. I am getting married and THINK I want to know if I have it because I want to start a family. I cannot stop thinking about this and how I might have the disease. I'm starting to think there is something going on in my brain. I'm getting dizzy and headaches. My father told me that my mother when she was 30 went to the doctors to get checked for dizziness. They ran tests and the only thing they found was something in the brain stem. Has anyone else that has been diagnosed had the doctor say something about the brain stem and is ddizziness a first sign to the disease? I'm 24 and just afraid and don't know what to think or do about getting tested.
Posted on 09/25/09, 06:09 pm |
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Why do you believe your mother has Huntington's Disease?
I'm sure you've done enough research to know that if you decide to get tested and you HAVE it, then your mother has it, too, so you can't tell her your results if she doesn't want to know her diagnosis. They may have run tests when your mother was 30, but I'm sure they weren't looking for HD, so their results mean nothing in that context. I'm sure you know all of this, but sometimes it helps to hear it from an outsider. I don't have HD in my family (that I'm aware of). I'm here because my significant other MAY have it. He, too, does not want to get tested. For a long time, I accepted that (we've been together for 12 years and I've known about the possibility for 9). Things have been happening in our life regarding his behavior that make it hard for me to continue supporting his choice to remain ignorant. If you want to be tested, do it. Talk to your significant other and do it. Realize that you may have to keep the results very private so that you don't step on your mother's wishes, but keep in mind that you may have a negative result for the disease and you still won't know if your mom has it. I wish you the best of luck. In the end, you need to make the right decision for you. But you knew that, too! :) 
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