Huntington's Disease Support Group

Hi
I am 27 and I am getting tested soon. I want to know too. I feel like there might be things I can change in my life now to be more healthy in the future. I want to prepare myself and my husband . I dont think I will regret it. My grandmother and father waited too long to get tested. I dont want that to happen to me.

alielectric, i wanted to let you know i have been studying as fast as i can for the past 2 weeks on huntington's. my fiance;who is 30 years old ,is starting to show signs and we just went in for testing will not know for a month now, but all signs point to huntington's- the sooner you can address the on sight of smptoms the better. prepair your muscles before they start to weaken. just being in good health now is not enough, get a pattern down in your life now that will be easier to maintain later with the on set of syptoms! attack postively -mentally, physicaly, spirtualy, emtionaly, and medicaly. my finace's family just did not address issue early and now it will be harder to get a patern started and having her understanding it better.
finacialy we now face blood work testing, MRI's EEG (brain wave scans) xrays of back hip neck the medical bills all at once is a bit overwhelming,so start now to be stronger for the fight ahead, and your family will be able to be there with more understanding of the slow onset of emotional chages.

Go to HDSa.com website and search for Community Service Centers.If you live near one and if you are willing to do clinical trials, you may be eligible for a lower price. I believe it is all confidential too.

Hi. I'm 27 and found out last year that I am positive for Huntington's. At the time, it didn't bother me. My now fiance and I wanted to have kids, and it was going to make a difference whether we adopted or had our own kids. I have found that periodically I have issues with things like education. I have a trade school degree in jewelry (which is a lousy industry to be in right now) so I might like to go back to school and get a degree in something I can fall back on, but I worry that I'll finish any degree and then start showing symptoms and never really get to use it.
On a different note, my fiance and I have decided to go ahead with having our own kids in spite of the risk of passing the disease. His family has a brittle bone condition that is also 50/50, and we feel comforted with the idea "better the devil you know than the devil you don't." Both of these illnesses were brought into our family by adoption, so we'd rather just know we know how to handle both and it will be easier.
I hope you can decide what you want to do.

I had insurance that didn't pay mine either, but now I do. I am 39, just did the blood test yesterday, and the MRI is next. The doctor said it looks like I do have it. I am adopted and my adoptive parents were told my maternal grandmother had it and now I seem to be getting symptoms. Scary stuff. Is anyone on the medicines? There was a medical rep at my doctor's office who seems pretty optimistic about it.

My mom has HD and she was able to get all the testing for free. We have an HD clinic in Birmingham, AL at the Children's hospital. I'm not sure if anyone can be tested for free or how went about it. I was tested at by neurologist's and just had to pay my copay. At this time I had Blue cross. I tink that if the doctor's office files the testing with the insurance company with the diagnosis codes that correlates with the symptoms of HD, they shouldpay. Mine did. I hope this helps.