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Discussion:
The body is a machine
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I have a theory......

A little history first:

Start of treatment, my HGB was 13.5 pretty good huh?

First week CBC showed that I was tanking...down to 10

Doc reduced Riba from 1000 to 400
weekly cbc's after showed HGB rising slowly finally reaching above 11 without rescue drugs, just the riba reduction.

Last week I was sick, so didn't go get CBC until Monday ( I usually go on Fridays) and it was 11.3. Doc upped the riba to 600 and said to still go on the next Friday and get another one to see if the extra Riba was going to tank me again.

Okay now here's where my theory starts...

My husband has been painting our house, huge job! So I decided I needed to help with the clean up etc. I was huffing and puffing trying to get air, my heart was beating a mile a minute, I got dizzy, but by god I forced myself to keep going! Well on Friday's cbc my HGB was 12.4!

So...despite added riba, 4 days later my HGB has gone up all by itself, and not just a little bit, over 1 whole point! Almost to what was normal for me.

My point here is that the body is a machine and if we DEMAND of it, it will produce! It recognized that I needed more oxygenated blood (to work helping with the paint clean up) and started to up the production all by itself.

I know you all are saying.... I don't have ANY energy at all! I know exactly what you're talking about. I spend the first 8 days of tx in bed! But I honestly think that we NEED to get moving, especially if you're anemic. DEMAND that your body work, and it will come through for you.

When I first came to DS, there was a guy that was a UPS Driver and he said that he worked full time all the way through tx. He said that it was difficult at times, really physical, but he was sure he was better for the physical effort that his job required him to do. It really helped him get through it all.

I am real excited that some of you guys are posting doing fun things that require you to get off the couch! Even when you don't feel like it. Honestly, I think this is the answer to several problems we are experiencing on tx.

Anyone else have an opinion? or been experiencing the same thing? As I said, it's just a new theory for me and I'd thought I'd share it.

Hope it's a great day for everyone!
Kelly
Posted on 07/22/12, 12:21 pm
32 Replies | Most Recent Add Your Reply
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Comment:
Email me when others reply to this topic help
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Reply #1 - 07/22/12  12:27pm
" Good for you, Kelly!! You are a mean machine! "
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Reply #2 - 07/22/12  12:32pm
" If it's a machine, i want mine to be a Ferrari! "
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Reply #3 - 07/22/12  12:41pm
" Start working on it hep! Lace up those tennis shoes and run like hell... down a couple of stairs to start anyway. lol! "
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Reply #4 - 07/22/12  12:42pm
" oh, i don't want to have to work for the ferrari. I'd like it as a present!

anybody got an extra one laying around?? "
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Reply #5 - 07/22/12  1:51pm
" The physical effects are real but there's a strong mind body component I am certain. Mind over matter. I think a big part of it is the headspace that we get in. It's easy to feel a little mental paralysis. I feel great when I make myself go out and do stuff. I'm going to Blacks Beach today with a friend. There's a steep goat trail to get down but the climb back up is a bear. I'll let you know how I do.

It's our most beautiful beach here. It's been around as a nude beach since maybe before the 30s. I like a tanline so not my style but the option remains. Today I will be with sunscreen under an umbrella. I've certainly gone body surfing in the nude though. Been going since college but not too much lately. Oh, there have been nude families there and even nude volleyball games at one area. Coed of course. It's a beautiful beach though with large cliffs in the backdrop and nude people on bicycles selling "ice cold beer" and sodas. Nothing lije transacting with a tanned hide, boobs and balls in your face on a seasoned beach goer. Lol "
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Reply #6 - 07/22/12  2:21pm
" Have a great time Ernie! "
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Reply #7 - 07/22/12  2:26pm
" For me it depends where my hgb is that week. If its around 12 I feel like doing things. But if it starts getting low I get tired and have headache's. My hgb keeps changing "
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Reply #8 - 07/22/12  2:35pm
" I know it's really tough to move when you don't feel good...last thing I wanna do for sure...but, I'm gonna keep working on the theory and see what happens. "
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Reply #9 - 07/22/12  2:47pm
" Kelly......good for you......I love you theory and it seems to be working for you..........don't over-do and make sure you keep yourself hydrated..........

They say the best thing I can do for my lungs is exercise...............real hard to do when ya can't breath......but I am taking Baby Steps:):)

Best of luck to you:):) "
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Reply #10 - 07/22/12  3:00pm
" Deb...if ya ever wanna quit somking, I'm your buddy! Just give me a little advance warning that you're ready so I can get my head around it. My dad died of COPD and I'm a fool to keep smoking..... but you know the addiction. ..... it's damn hard! =)

Just lemme know honey bun. I'll give it a go with you.
Love,
Kelly "

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