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support for family
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I found my partner over a year ago. 4 weeks ago we rented a home together and one week later he was diagnosed with HepC. I am a health care worker. I know what all is involved. the disease, the treatment and the side effects.
He is refusing conventional treatment as he is a insulin dep diabetic.
Those are the facts. He is angry and scared as he should be.
I am morosely saddened. This disease has come in and destroyed the future we had planned.
I know that sounds selfish as I tested negative but I am looking for some support system for myself and him. He has no desire at this point for a support group. I know I need someone to help me get to a place that if he becomes ill I can be helpful. I need to get through this depression so I can be of help.
thanks for listening to me.
Posted on 04/16/12, 01:39 pm
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Reminder: This is a support group for Hepatitis C. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 04/16/12  2:36pm
" Give both of you some time for the reality to set in. As the initial shock passes, hopefully each of you will be informed and empowered to deal with the diagnosis. Most of us have lived for decades with this disease and our futures still lay before us. Your future has not been destroyed, if may just follow a slightly different path. All life is precious and fleeting. Embrace today and as best as you can, prepare for tomorrow. This site is a great place to get information, encouragement and support. "
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Reply #2 - 04/16/12  3:50pm
" Thank you and in my heart I know all of what you say is true, he is asymptomatic but was diagnosed because his liver functions had started to elevate. Without treatment I dont know what that means. I know in my heart that our future is ahead it is just a different one than we had planned. Our sexuality was somewhat tried anyway due to his age and diabetes now this is really a door slammer. So we are trying to figure that out. His emotions of feeling "dirty" are playing into it right now. He knows I dont feel that way at all. In fact I have encouraged our physical relationship. I have told him we just have to use safe sex even though we are monogamous. But he is without the urge or need right now. I am patient and will wait as long as he needs. Thank you for this forum. I had no idea where to go and stumbled in. "
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Reply #3 - 04/16/12  4:15pm
" I am soo so sorry this has happened to you both. There is a chance they want even give it to him because of the diiabeti thing but just be supportive and know we can not change what has already happened. Stand by him if you Love him Love is as the beatles say what makes the world go round. It is your time to caregive your husband so put your depression aside for the love you have for him. He will need it. Hugs to ou both :-) JiM :-) "
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Reply #4 - 04/16/12  4:56pm
" @Dreamkite3
I dont think putting my depression aside is helpful , I feel allowing myself to be sad and working through it is way more healthy. there is a reason we cry it is a body response to help us heal emotionally. I dont often cry in front of him but once in a while we cry together. "
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Reply #5 - 04/16/12  5:50pm
" Welcome to DS.

Once you get over the shock I think you will be fine. Hep C is not a death sentence or the end of the world. It is not a sexually transmitted disease. It is transmitted by blood to blood.

I don't know if they can treat Hep C people with diabetes. Others here will know.

He should have his liver checked to find out if the virus has done any damage. That would determine how critical treatment would be. There are many new drugs out there and easier treatment will be coming out in a few years.

This is a good site to get support and information. "
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Reply #6 - 04/19/12  11:49pm
" Hang on and refrain from making any decisions about anything for at least a week.....and then make no major decisions for 4 weeks.....

nothing will happen in that time, and prob much longer right now.....keep the diabetes in check and the stress level as low as possible.....what type does he have? people who have hcv do treat when they are diabetic.....

Gd always has a plan for us, and young lady, this appears to be yours....

My experience....

I met my BF after a serious car accident i had late Dec 2009....I was injured badly spleen, and was never quite the same....We have known each other indirectly for 30 years...
We went on vacation in the Keys in the Spring and then moved in together 3 months later.....
6 months later, I was dx w HCV.....
so I totally get your pain.....
He had a choice and we took our time to think things out.....I wanted to do alternative therapy and when I had a biopsy and heard I had some moderate to serious non cirrhotic damage, alternative therapy really wasn't an alternative any longer, it was a definite NO.

He chose to take care of me, and stand by me as best as he can....and he has....it has not been awful, but it has been a roller coaster and a will of strength and patients and alot of tongue biting....

I have been on tx since Oct 2011 and am on week 27. I am undetectable since week 8.....

I will be thinking of you my dear....and know His arms are wrapped around you right now, holding you up.... "
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Reply #7 - 04/23/12  12:20am
" There are new, easier, more successful treatments coming soon. I completed a Clinical Trial last August. No Interferon and only 12 wks of Tx. I have a lot of other health problems and my Tx. was not that bad. Wouldn't want to have to do it again but it was much easier than Tx. involving interferon. I'm still virus free at 8 mo. post-tx. There is hope, this isn't a death sentence. Meanwhile, welcome. You'll find lots of good info and support. Many differing opinions too but ea. one of us has to decide what path is best for our situation. "
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Reply #8 - 04/24/12  10:12am
" I think Abbott is still recruiting in some areas plus there are many other Pharms. that are recruiting for Inteferon-free Trials. Try clinicaltrials.gov and look under Hep C or call any Universities in your area that have a Med. School. Many of them conduct Trials.

Looked it up - try this
http://clinicaltrials.gov/ct2/show/... "

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