What is Hemophilia
Hemophilia or haemophilia is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an a...
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Any fellow Von Willebranders out there?! :D newbie
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Hey all!
Hope everyone is doin great, my name is Sharee and I was diagnosed with Von Willebrands Disease type I at age 6. I am a newlywed and planning for a baby next year so it would be really cool to meet other friends like me, especially women who have been through child birth with hemophelia! Im also here for support so lets be buddies in helping each other know and understand the condition! Posted on 10/13/08, 04:10 pm |
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Hi Sharee,
I'm new to this group and just saw your posting. Any news on the baby front for you? If so, I hope all is going well. My daughter who was dx'd at age 4, so we have only been learning about this for the last 10 months or so. I have gotten great information regarding vWD from the National Hemophilia Foundation. Have you accessed them for any information? If not would definitely be worth checking into. Do you use and HTC center or your own Hemoc, and what tx do you use for a bleed. My daughter uses DDAVP. Happy to chat if you wish. 
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hi sharee..I was diagnosed with vonwillabrands about 6 yrs now,i dont know anyone else with this??Ive been trying to have a baby myself now for 8yrs and no success..i wish you all the luck in conceiving!!
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