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Discussion:
CHF & MS Plus Cardiomyopathy
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Hello to all . I'm new here. My name is Sylvia. I'd like to share my horrible experience and see if anyone else is going through what I have .
I got diagnosed last year around June 2011. They told me a unknown virus ate my left ventricle away and I needed a pace maker asap.
I got one put in on July 28 Th 2011. My incision site still hurts like all hell! CONSTANTLY!!!
I also have MS, was diagnosed about two years ago. Like that wasn't enough right ? lol , now heart disease.
I'm constantly tired !
my faction rate is at 15 % oh and BTW i'm 38 yrs old.
Obese and also bipolar.
God just gave me a good deck ahe? It's over whelming to think , I could die at any time.
I've cut out all salt and caffeine. I try to eat right , but i'm a emotional eater.... DAMN SUBWAY !
I have the horrible edema under control now with a med called Zaroxolyn and lasix combined.
I'm always scared that I'm going to die , even though I have a pace maker / defibrillator in me.
The thing is when they put the pace maker in, and tested the difubulater , it wouldn't work, it took them 15 trys to get it going.
i ALMOST DIED ... so how dependable it is now I have no clue.
so yeah...I can't exercise because I have no strength between the CHF and the MS...
I just don't know what to do anymore....
sorry for my ramblings , but that's what is going on with me , plus more , but that's just a list of meds I take to survive...
Any suggestions? advice? Any would be more than welcome !
Thanks for reading and God Bless !
Always Sylvia ~
Posted on 02/15/12, 01:13 am
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Reply #1 - 02/15/12  5:59am
" Hi Sylvia
Welcome to the group.
You are not alone - sad to say.
I have cardiomyapathy - and was at 10 ef.
The heart gets re-shaped from the cardiomyapathy - not eaten away.
So you can re-shape it back over time - but it takes a lot of owrk.
You must cut the sodium more - go to fresh fruits and veggies. Always have some protien with them to adjust your system to them - and that will melt the fat away. - NO pasta, breads, or cereals. Extremely limited dairy, NO cheeses, and extremely limited processed sugars.
You can do it - I did it and I hate veggies and fruit.
I have severe sciatica, and stenosis of the spine.
I also had asthma, copd, emphysema, and bronchitis - I have knocked them mostly out now.
I also have cancer in my spine now.

I am only mentioning the other problems I have to show you that there are others fighting the battle with many other problemns too.

you need to go to the gym 3 to 4 times a week and do a lot of cardio
start very slowly every time and build up. You can do it. It is the way to fight this problem. I used to go and pass out some days. Other days I would go out to the car and sleep for a while after the work out.

passed out so many times in the first gym - i finally changed gyms - very embarrased.

get to it hun - it will make you feel so much better.

And always after the work out - go home and put legs up for a couple of hours to help the heart to catch up. That is a must.

hugs, ttfn, Raoul "
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Reply #2 - 03/28/12  2:33am
" hello You really need to exercise my friend.. "
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Reply #3 - 03/28/12  8:14am
" I'm sorry I never replied . My MS has been acting up badly... so not really into anything.
I give u props Raulby! You've done what I need to do and keep putting off.
NO more procrastinating!
I will call the psychical therapy TODAY and get to exercising with it being safe and under medical control. for now.
I need to change so bad, have to change for my life. It;s so hard!
I have the no caffeine under control, I do the no salt with no problem.
Just need to lose weight badly!
Good food these days are very $ but IDK anymore... it;s my life in the balance...
Thanks so much for both ur advice !
If it wern't for the last relpy I woulsn't have seen this ...
so tyvm to cbhattarai!
I needed a kick in my ass ..lol
Always Silky ~ "
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Reply #4 - 03/28/12  2:29pm
" Hi Hun
Yes , the exercise is very important.
And you might benefit from going on the paleo diet. You can check it out by googling it as ,,,,recap paleo diet.

Hugs, Raoul "
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Reply #5 - 03/28/12  5:28pm
" Sylvia,
Make yourself a favor and next time in the dr. insist that he order a Vitamin D and Vitamin B1 and B12 values in your blood.

Ms and bipolar disorder as well as metabolic syndrome (obesity) can be related to deficiencies of them.

Jesus "

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