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I am wondering if anyone comes to this site anymore a lot of these posts look pretty old, oh well.
Anyway, I am a very lucky 39 year old woman who was diagnosed 2/10 with squamous cell cancer in my tongue. When I say I am lucky it's because apparently I am pretty special. My oral surgeon said he has NEVER in 35 years seen anyone as young as me with this type. He says most people that have it are about 60 and spent their whole life slamming whiskey and smoking multiple packs a day. While I smoked moderately and continue to drink socially, apparently my vices were not enough to explain my diagnosis. Either way, its here and so am i. I have survived the biopsy and surgeries to remove the tumor and neck dissection only to find out its stage 3 and in my lymphs. Yay for radiation. I start next week and from what I read on the radiation page, it looks like a real picnic. For the most part I have dealt with this well, no crying or self pity moments really. But lately I do find that I tear up at really stupid things and I am starting to feel depressed I think, unlike lots of folks in this position, I am pretty alone. I have no husband and no children and virtually no one to talk to about this. I think I am starting to feel really lonely, kinda sad that at the end of the day I face it by myself. So I guess- those of you who have spouses and family to see you through, count your blessings. Its a bitch going through it by yourself. I am facing 30 radiation treatments and after reading all that stuff I am feeling terrified. I have already went through withdrawal from the pain meds, malnutrition, thrush, pain, loss of appetite, loss of giving a crap, etc. It looks like I am going to go through all of this again. I hate eating so much, its such a chore. Did anyone else fight appetite? I have always been on the fat side and loved to eat, not anymore. If I see one more can of ensure I am going to scream. Well if anyone is out there, thanks for reading my rant. Lisa from Montana Posted on 04/07/10, 03:04 pm |
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I am still fighting appetite. I am now 4 months past my neck disection. I do feel hungry now, just not much tastes right. You are right about family support. Pretty tough without it. I am sure you will find plenty of support from your Dr's and nursing staff. There were all kinds of things offerred at the hospital where I was treated. I just read about George Karl the Denver Nuggets basketball coach who just finished his radiation and chemo. If you google him you can find a link to his blog. Pretty much describes the whole shebang. Not as scary as it sounds, (once its behind you). Keep up the good fight. 
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I feel bad you don't have some one to advocate for you!!!! but we are here. we know about all the body functions and are not embarressed. so put it out there....
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Thanks you guys for replying. I read a lot of stuff about radiation of the head that I probably shouldnt have. It was very discouraging and depressing. God I just want this to be done and to get my life back. Seems like I have been sick forever. I bet you guys have felt like that too
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Good day to you ,I am hoping our wonderful Lord God blesses you with much healing this year. Peace to you friend. Sorry about your battles.Think positive. The school of the[christian] Church is an admirable surgery, a surgery, not for bodies, but for souls. For it is spiritual, and sets right,not fleshly wounds,but errors of the mind...What is to be dreaded is, then, not external disease, but sins, for which disease comes, and disease of the soul, not of the body: ...corporeal[bodily] and external good things are temporary; but the unseen things are eternal. Now those that dwell in a corrupt body, like those who sail in an old ship, do not lie on their back, but are ever praying,stretching their hands to God. Peace and LOL to you. You can conquer through Christ terrible battles,friend
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Yea I'am here and I would like to speak to you! I have been through hell and back not only am I a cancer survivor but I am also a Vet which served for the freedoms of this country. I will talk with you and ry to understand with what your are going thru what w hat ever happens to us because I know what I know went thru . Together we can go trhru life with each other and help each other with ever day problems.. Please let us converse with each other because I need to have some one that is on this side of cancer. If you would like p lease respond.
a friend steve
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Dear Lisa I dont know what your going through because Ive never been through cancer but my little brouther is fighting the same thing and it strang but he dont want any one to help him is far as his famely it really hurt me when he said that he dident want to come hear with me and let me take care of him Hes liveing at his friends house and would rather let them take care of him then me I cant understand it I was the first to hold him as a baby and he follewed me all over the usa weve always been so close now we dont talk at all hes in the last stages of it and the dr said the cancer isent taken him the not eating will take him. when I do see him I cant beleave that hes still hanging in there hes only about 80 pounds now and looks awfull I just feel like no one can take care of him like I can and it is so painfull for me. but Im shur hes in alot more pain then Ill ever know tho I wish that you were hear Id take care of you Well good luck and I hope all goes well remember that you have alot of friends hear you can check in anytime love and hugs to you Joyce
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hi, it is a tough battle just when you think you are soing good it knocks you back down again. i had 39 radiation treatment inside mouth and left side neck. i won't lie it was terrible .i lost 40 lbs reall fast. food started tasting like metal after only 3 times then sores in mouth. ensured out really quick but fought having feedin tube. have had 5 surgeries last one was 10 hours . split my whole jaw open took my bottom teeth out cut off half of tougne and took meat from my left forearm to put back on tougne. now tougne does not move no teeth on bottom so its pretty much boostplus or cream potatoes things like that. that was 15 months ago. now they think it came back under jaw and in both lungs. started chemo yesterday.3 different kinds of medicines at once for 13 weeks. i am 62 and i work out in gym 5 or6 days a week and will continue untill can't go .it keeps me motivated and positive. found great support group there. lift your head up and fight like hell. you can do it.godbless you
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Mudpie, you are amazing! You really do lift people up. I look at you and what you are going through and you are one fighting soul.
my Husband has not reached his 2 years yet for being clean and that fear is always there, but you, you are something else. God bless you!
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You sound like me I had a very unique type of tumor in my head and none of my doctors so far have been able how I got this specific type in my head. It has now been removed as of last year and being carefully watched. But like you I never had any luck at all finding many people with the exact same thing. There isn't much information out there about special occurances either. Thats why I keep trying to spread the word and help others by giving doctors names that have helped me through this.
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