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Vocal Cord Cancer
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I have been sitting here for hours looking this wondering where to start...
Back in August/September 2010 My brother was dx'd with cancer on his vocal cords...He is 46 years old...for 2 years before the diagnosis he lost his voice and was sent to several doctors, speech therapists, had several tests which showed nothing...then all the sudden....cancer.. He was stage 1 90% cure rate....He finished radiation in October...he has been back to the ENT several times due to several problems....pain in the area, excessive mucus, still not being able to talk... Well, the biopsy on January 4th shows cancer cells....it is undetermined if they are active or not...the ENT told us that there were "scabs" on the area that was biopsy'd.....Due to my brothers "anatomy" the only option now is to do a laryngectomy....aparently my brother has a very small airway and the instruments the doctors use to do surgery in the area are to large to do any other kind of surgery.... This is a nightmare...from "He is going to be fine, we caught this early" in September to this....My brother is a very active man...he works at a physical job 80 hours a week every week....now can't work...he has been in the past a body builder, and has competed in weightlifting compitions...he is a health nut... We do have a appointment with a specialist that uses a robot for surgery so that hopefully some of the voicebox can be preserved... I guess I just needed to get my story heard to someone that understands the things we are going through....Everytime I look at my brother he has this blank look on his face and his wife who is soooooo wonderful is so swollen from crying she looks like a different person...I think my mother does not really understand how serious this situaton is...which is probably for the best...... I have always been the strong one in the family...when someone is sick....I take it all over!!!! When our father died of lung cancer 9 years ago I held it all together....thats the way I am made....now though...I don't know what to do....Sometimes I don't even know what to say.... I guess I just wanted to see if I could talk to some folks that have been through some of this....it always helps to talk to people that have knowledge of what you are going through frist hand.... I always say to my brother...I can talk to you but I really don't know what you are going through, the only ones that know whats going on with you are people that are going through or have been through it... Even if no one responds...Thank you so much for listening... Posted on 01/21/12, 03:59 pm |
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HI,
I just saw your post. My brother has just been diagnosed with the very same form of cancer and told there is a high cure rate. I am very hopeful and praying hard but scared to death. The waiting for the doctors to do something is the worst, maybe because I want everything done now. I hope you and your brother and family are hanging in there. i'll be thinking of you. 
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Hi, I wanted to reply to let you know that you and your family are in my thoughts and prayers....The cure rate for this kind of cancer is very, very high,,,mid to upper 90%...and the chance of it spreading to other parts of the body is like less than 2 % .....I know how you are feeling about wanting the doctors to move quickly...I always wondered why we had to wait 2 weeks or more sometimes for an appointment with a doctor when we knew my brother had cancer and my thoughts were how much is this going to spread in 2 weeks....I feel so blessed that my brother is doing very well now and is even looking at a return to work date at this time....My advice to you and your family....Never, ever settle for an answer you are not happy with....Always get a second opinion...third or forth if you are not comfortable with what you are being told....
Gods Blessings to you and your family
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Oh bless you, this has meant so much to me. I've been sitting here all day just peeved at the world for everything but it's nice to know someone has felt like I do and to also know the statistics. My brother basically wants to give up but I've battled cancer and by gosh I know the ropes and I'll fight tooth and nail for him. Thank you so much again and I am so glad your brother is doing better. :)
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I am so sorry to hear about your brother. i was misdiagnosed for 5 years and have recently finished my one year after treatment. i also had stage 4 and mine spread. i just had a clean cat scan and have high hopes i will be fine. i am concerned about your brothers mental well being. attitude is everything with cancer. it is so hard and depressing when you are unable to speak. it takes the life out of you, but have faith. stay strong for him and his wife. i feel that goose only gave me what i can handle. i still don't have full use of my voice , but i have found other ways to help others.at first i was sad that i lost my job but now i see it as a blessing to have time to help others. have your brother join so he can have support. and pray for him. i send you blessings.
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