Advertisement




More DailyStrength
Health Event Calendar
See what's new on the site
Step-by-step Tutorials
How to use DailyStrength
We're on Facebook
Check out our page
Follow us on Twitter
Read our tweets
Get Cool DS Stuff!!!!!
Shirts, Hats, Baby Wear
Discussion:
HPV - Q&A from Specialists
Watch this 
View More Posts Ignore
Hi all,

I recently was diagnosed with LR HPV- genital warts. To say this has caused devastation is an understatement. I am grieving a future I thought I had but no longer seems reachable. Im angry also that only some of us deal with the symptoms and know we carry this when so many people get away scott free. The lack of symptoms and testing causes the stigma attached with HPV.

In order to find out as much as I could about HPV I have emailed a few reputable sources to get their answers. Below is a summary of the replies I got. Please take a look and let me know your thoughts. Also if you want me to ask them further questions please let me know.

1. On testing of low risk HPV
- There is a low risk test called Diagene Probe A. Not commonly used but is out there. Your doc can order it on a pap test.
-A low-risk HPV DNA test does exist but there are no clinical indications nor recommendations for its use.
- There is no test as what is the point of testing when most people would be positive.
2. On the likelihood of clearing the virus.
- If you do not smoke, have AIDS/HIV or transplanted organs your body has an excellent chance of clearing the HPV. Whilst this cant be 100% confirmed that this happens it is a very high likelihood that the virus clears and remains gone.
- In 90% of cases, the body naturally clears an HPV infection within two years. This means that a person is no longer infected with HPV. If you were to test negative for low-risk HPV and later had another episode of genital warts, this would be caused by a new infection. It would not be from your original infection since your body had already cleared that infection naturally.

3. On the rates of recurrence
- It is hard to distinguish between reoccurrence and reinfection. Reoccurrence can happen under extreme stress or hospitalisation but women do not usually have reoccurrence's.
-The idea of “re-occurring” outbreaks, is an old one. Now it is thought that rather than re-occurring outbreaks, most people experience re-infection. (The only time this is different is if the individual is living with a compromised immune system in which case re-occurrence is more likely). Often people who have one occasion of genital warts, never have another one.
- Another source quotes that they generally re-occur after 3 months.

4. On what the likelihood is of getting rid of warts for several years and then them coming back in pregnancy
- Less than10%.
6. On telling partners current and subsequent about infection
- Persons with genital warts should inform current sex partner(s) because the warts can be transmitted to other partners. In addition, they should refrain from sexual activity until the warts are gone or removed. It is not known how long a person remains contagious after warts are treated. It is also unclear whether informing subsequent sex partners about a past diagnosis of genital warts is beneficial to the health of those partners.
-until we have a test for men, it is not morally imperative that you tell anyone you have had HPV. that is a silly idea - like telling men that you menstruate.... totally uninformative and just puts you in a powerless position...
- If you are close enough to get intimate with someone you should be close enough to tell them something like that.

I will update once I have more info but PLEASE let me know your thoughts on the above

Thanks
Posted on 08/07/13, 07:22 am
19 Replies | Most Recent Add Your Reply
Reminder: This is a support group for HPV. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 08/07/13  10:55am
" I will answer as best as I can, I'm a male and therefore cannot answer most of your questions, neither am I an expert or a doctor. But I'll do what I can.

1. I don't know

2. It really depends on the body. Someone here recently said she has it for 8 years. I knew of this guy (who was also from this forum) who had it for 8 years and miraculously, he was cured one day. He just said that he went to check his penis and violah, no more warts and he has not been seen ever in this forum again. In fact, you can check out a recent comment by JC, he was a success story and if you check the archives, a lot of people were here but they left because they are free from HPV. Some people take 2 years, some only had one outbreak and they're gone. Some people dealt with it for 5 years or more.

The doctor I spoke to actually said 2 years is an UNDERSTATEMENT. 2 years is NOT the precise date that people are cleared from HPV. She said that the REALISTIC STATISTICS for clearing HPV is actually 4 years or more.

3. Recurrence is hard to determined but it is link to my answer in the 2nd point. Everyone have their own health system.

4. I don't know but if you have more information, that'd be great. I want to have kids with my wife next time...if I do have a wife.

5. Where is 5?

6. This is a very personal thing. Some can live with not telling, some cannot. Some allow guilt to consume the person, sometimes they feel they can get away with it. To me, it is best to tell. "Treat others how you would like to be treated". I wouldn't want anyone I am with to hide such a secret for me. If you love me, tell me, let us face this together. If you trust me, tell me, so you know I'm there. And vice versa. "
View More Posts Ignore
Reply #2 - 08/07/13  6:54pm
" Igrief, thanks for your response.

I will try to get more information on the pregnancy part for you.
I am also goin back to the clinic for my first cryo session tomorrow so will so will ask more questions then. Also can anyone tell be what to expect eek! Will I have a sore you know what?

In relation to reoccurance's it seems like most people only have one to two outbreaks judging by the fact some people only have one post on here then none again! I suppose this is enlightening. I will remember when I hopefully finally clear to update with happy statuses.

I am with you in the fact that you should disclose health issues with all partners however it is a frustrating subject. For instance say in 3 years I meet someone and haven't had an outbreak in 3 years and have been told by my doctors to say nothing but I decide to tell the person I previously had genital warts the likelihood is they will run a mile. Whilst we all know here now that it is common and a lot of people have it without symptoms that is not the general consensus in public. Sure only the other day my sister was talking about an ex friend of here's who has the disease and therefore apparently is a skank. I haven't told my sister due to this attitude she has but am building up the courage to tell her that her underdstanfjng is wrong. I am not a"skank" but yet I'm stuck with it. I understand why people would want to run the other way. For example men never know they have hpv without the actual warts. So they live in blissful ignorance, why would they want to jeopardise this. Especially since the facts are so inconclusive that you can't even tell them you Defo have cleared it etc! Also I understand that if someone cares about you they will stay but the reality is in this day and age people generally have sex before they are in love, that is the modern day dating scene. Also you don't want to lead someone on for moths if the risk to them is not worth it. Sorry for sounding moany but I'm having a bad day today! "
View More Posts Ignore
Reply #3 - 08/07/13  7:09pm
" RosieB86
The cryo is not that bad, it's like a little stinging feeling.

Personally I'd prefer that treatment over 12 weeks of Aldara.

I had the cryotherapy and the dr. gave me condolyn gel and if you can get it I highly recommend it.

I have been through the Aldara, Cryo, and Condolyn, I have also bought the Terasil, taken supplements from activamune (very expensive, but worth it). I am at this moment wart free for over a month :) "
View More Posts Ignore
Reply #4 - 08/07/13  7:10pm
" Also is there a way to send an email message to everyone in the group so that we can ask old members to check in. That way we could get a percentage of who has cleared etc? "
View More Posts Ignore
Reply #5 - 08/07/13  7:13pm
" Iwillneverbethesame thanks for your reply. I thought it best to get the cryo as they can see more there than I can see so at least hey will zap everything.

How are you getting on with your challenge,relationships etc? "
View More Posts Ignore
Reply #6 - 08/07/13  7:39pm
" I have not dated anyone in almost a year and a half. I am terrified and still going through the emotional aspect of all of it. If I ever date again, it's going to be with someone who really takes the time to know me and when I am ready to handle that type of rejection. Right now I couldn't do it.

I was not very well when I found out and it took me months to stop crying all the time. I am better mentally than before, but I still have the crying fits occasionally.

It's a process I guess we all go through our own ways of handling it. "
View More Posts Ignore
Reply #7 - 08/08/13  12:56am
" Thanks for the informative post Rosie. I was fortunate to find a good dermatologist that I go see for my genital warts. I have been seeing him every four weeks since Sept. 2012. I am very familiar with the cryo treatment. When I first met him and we talked he told me that over the years he has seen the best results with the cryo. It is not necessarily cheap, an exam($50) with cryo treatment($65) can run up to $115 per visit. If I am clear then I only pay for the exam.

A couple of advantages of the cryo is that it kills the wart instantly. The second they freeze it the wart dies. Everything else after it is frozen is the healing process. Personally I liked that. No applying creams for weeks/months or putting acid solutions like acv on. Everyone has a treatment that makes the most sense to them, both personally and financially, and will work the best for them for me the cryo works well. The other advantage of the cryo is that let's say the doctor is wrong and the spot he treats is not a wart but instead a gland or small patch of oil under the skin. Treating it with the cryo will not harm that spot. Yes the area treated will have to heal up but you are not necessarily damaging things permanently.

I don't know if this is your first treatment with cryo, but if it is on your follow up visit, you and your doctor should evaluate how the treatment went, did it work well, and how well did your body heal up. For me the area treated does one of two things. The area either scabs over and then the scab falls off. This usually takes about two weeks total, or the area will swell up slightly and get red and then the swelling and redness goes away. Again this takes about two weeks as well. By the time the forth week rolls around and I go back to the doctor you can hardly tell where the treated area was/is. Some areas will take longer to heal and I do have some areas that have taken several months for the redness to go away but that is more the exception than the rule.

A couple of other things. If there is a hair follicle in the wart, it is definately not a wart. Also don't be too surprised if things get worse before they get better. All the wart treatments that I know of are all trying to do the same thing. The treatment is trying to kill the visible wart(s). By killing the wart it is also irritating the virus. By irritating the virus the doctor is hoping that your immune system will better identify the virus and find a way to surpress it. The virus is not happy about this and will try to live/multiply. Warts have 3 goals, they want to show up, they want to stick around, and they want to get bigger. I know after a couple months of treatment I went from having 2 or 3 warts to treat to having 4 or 5 warts to treat. Not long after that though it got a lot better and since March I have had either zero warts or one questionable "wart" which we agreed to treat. Each questionable spot was basically a dot hardly visible but why take a chance. Again one of the advantages of cryo, you can get a little aggressive on questionable spots. You may be one of the lucky ones and your body will react quickly and things won't get worse but instead clear up and not come back. According to my doctor this does happen to some people. Let's hope for the best.

Good luck and best wishes. "
View More Posts Ignore
Reply #8 - 08/08/13  12:49pm
" "The doctor I spoke to actually said 2 years is an UNDERSTATEMENT. 2 years is NOT the precise date that people are cleared from HPV. She said that the REALISTIC STATISTICS for clearing HPV is actually 4 years or more. "

I REALLY hope that's not true. I hate the thought of having even more surgeries for the next 3 years to get rid of this crap.

" I have also bought the Terasil, taken supplements from activamune (very expensive, but worth it). I am at this moment wart free for over a month"

Thanks for sharing these. I'll definitely have to research on the particular supplements.


"Also I understand that if someone cares about you they will stay but the reality is in this day and age people generally have sex before they are in love, that is the modern day dating scene. Also you don't want to lead someone on for moths if the risk to them is not worth it."

This quote resonated with me. Unfortunately it's hard to find someone that's willing to be friends for a period of time before getting in the sex discussion. And in my case being gay, a lot of guys have this thing about wanting someone "DDF" (Drug and Disease free - neverminding that they may not necessarily be those things). Of course those aren't the right guys for me but they seem to be prevalent unfortunately. "
View More Posts Ignore
Reply #9 - 08/08/13  4:29pm
" Hi all, so just back from my first cryo which wasn't so bad. I had a tonne of questions I wanted to ask the nurse but I got upset an just left without asking. I think part of me thought when I went back they might say they had got it wrong and I don't have warts. Sure I would never be that lucky.

Throughout the treatment the nurse was telling me what she knew about warts and it basically doesn't agree with what I had posted previously which was answers received from the CDC, Dr d Harper who worked on guardasil, and a support service based here in Ireland. I also got answers from the Irish family planning clinic which I will post on here shortly. The clinic I went to today said that the virus is believed to be for life, she said that most people get reoccurance's down the line and the very lucky few have no outbreaks after, they also told me when I first got diagnosed that you only need a condom when you have actual warts( I laughed coz lets face it the chances of ever having sex again are slim to none)! This is completely diff to what other organisations say. The problem is the answers are so incomplete. Also something else i think is that the lack of testing is ridiculous, surely testing would stop the spread of it.

Midas I know exactly how your feeling, how long have you had symptoms for?

I don't Know when my anger will subside if it ever does. I was thinking today how there is so many people who have multiple partners nd will never be affected by this. I have had 4 and only one was outside a relationship(8 yrs ago) yet I have this raw deal! God I wish for a miracle! Imagine a cure, but sure why would they bother when the reality is they don't care coz its not dangerous! I tell ya what it certainly is mentally damaging! "
View More Posts Ignore
Reply #10 - 08/08/13  4:35pm
" I have been wart free for just over 6 month I had anal warts for 2 years before I got surgery. They have not come back and I hope they never do it was HELL what I when though here. But I was really lucky to have a lot of good support around me! Just keep fighting and take care of your well being "

First | Previous | Page: 1 2 | Next | Most Recent Add Your Reply
Advertisement


More From Around the Web