What is Guillain-Barre Syndrome GBS
Guillain-Barré syndrome (GBS), is an acquired immune-mediated inflammatory disorder of the peripheral nervous system (i.e. not the brain or spinal cord). The pathologic hallmark of...
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OT Students at San Jose State University
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Hello,
I am an Occupational Therapy student at San Jose State University and have some questions about Guillain-Barre. I have been learning about Guillain-Barre in class, and am interested in learning about how Guillain-Barre has personally affected you. I would greatly appreciate your responses to my questions. 1. How has GBS affected you personally and emotionally? 2. What limitations do you experience in your daily activities, such as self-care, mobility, community involvement, social participation, ect.? 3. Are there any activities that you have a difficult time with that you once did not? 4. What area in your life has GBS had the largest impact on? 5. How do you find support on a day to day basis? 6. How have you coped/dealt with GBS? Thank you very much for your time and input. I look forward to hearing your responses. Regards, Jen K. Posted on 04/28/09, 03:04 pm |
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1) There are ups and downs with the illness.
2) Normally I can run and go to the gym but when it comes back I don't feel like getting out of bed. 3) Fine motor skills with my fingers is diminished. I don't play piano anymore. 4) Planning is difficult because my condition changes constantly. I can cope with the tingling in my hands, feet and face but when it is inside my chest or the migraines life is difficult. 5) I have lots of family and friend supports with many praying for me. 6) I try to live my life as normal as it was but no longer try to push through when my situation worsens. Reading about others stories has helped a lot. 
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1) Most of the time i'm ok with it,but there are times when i get upset i have this.
2)I have no feeling in my hands still so its hard to grip things,its like i have forgotten how my hands work.Cooking is real hard cause i cant cut things but my husband helps me out alot. 3)I did alot of art before and now i cant (for now) 4) Going outside of my house by myself,i'm scared i'm going to fall. 5)My family is a great support. 6)How i deal with it is i tell myself my GBS could have been worse then it was, There is a video on youtube of a lady with GBS and she had it so bad,it took 8 months for her to even be able to go outside in her bed. Hope this helps Sarah in Houston
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