What is Fragile X Syndrome
Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the F...
Join Now
|
potty training
|
Watch this |
| View More Posts Ignore |
I am a new member. My son is six. He has Fragile X Syndrome. He is considered severe. Since he was three we have tried every summer to potty train him. He does have some signs of being ready for this. He can dress himself (sometimes the shirt or shorts are on backwards etc), but he can pull his own pants up. I would like to hear from anyone who has a child with Fragile X and is considered severe, what worked for their child. Also, at what age they were potty trained. I have heard that some children are not trained till age nine. My sons speech is very delayed (about 12 months or less), but he understands a lot more than he can say. Thank you.
Posted on 08/14/07, 10:08 pm |
| 5 Replies | Add Your Advice |
| View More Posts Ignore |
My son is considered severe and he is still not fully potty trained. He is 11. He does use the toilet about 95% of the time, he just doesn't tell us when he needs to go. And he has the ability...he just doesn't. We have to put him on the potty every 2-3 hours. But he uses it every time.
When he was about 8 or maybe 9 we decided to get rid of the pullups. He was dry all night and had been for years. We had a few weeks of consistent accidents but he started to get sick of the constant changes and he also realized more and more of what we were wanting through excessive praise. It was long and stressful but it happened. 
|
|
|
|
||
| View More Posts Ignore |
seratedsky,
Thank you. Our son has also gone dry all night for the last three years. It is just hard to let him know what we want him to do, since his speech is so delayed. Thank you for giving me hope. Any other advice would be greatly appreciated.
|
|
|
|
||
| View More Posts Ignore |
my son is 13 years old he is still having problems sitting on the toliet he will go but sitting has been the issue for a long time i have tried to encourage him but he has accidents at home and he has meltdowns about it when it happens. i dont know what to do and i wonder if we can help each other out here. thanks
|
|
|
|
||
| View More Posts Ignore |
I am having similar issue with my youngest. The issue mainly seems to be she is not bothered when she poops inher pants. We got rid of the pull ups a few months ago. She is more shedule trained for peeing but for pooping she still goes inher pants. I dont know wht to do to get her to go on the toilet.. It has been rather messy to clean up that is for sure
|
|
|
|
||
| View More Posts Ignore |
my son is 13 and has fragile x i have fragile x also he isnt fully potty trained he wont sit down and thats become a problem for me so i understand what us moms are going through. he has accidents at home all the time. so i am trying to encourage him but its so hard to do that. i hope we can help each other out here.
|
|
|
|
||
| Add Your Advice |
