What is Fragile-X-Syndrome

Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the F...

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Tuesday November 24, 2009

Members in Need

Show stories in Members in Need
  • my kids my vida loca!!

    Thursday, March 27, 2008 | A Venting story

    Today has been a good day. Unlike other days its usually pretty hetic around here. Jacob takes up most of my time. Iam a mother of 4 childern I have an 19 yr old and two little boys one is 9 and the other is 6 ( I guess thats not so little is it) And I have another child out there who is 18 as of August. The reason I say that is because 18 yrs ago I gave him up for adoption. But thats another sto...

    1 Recommendation

    5 Comments

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  • I'm flippin manic again...  my body is so tense, especially my calfs and my mind is whirling away, spinning out .... take a flippin pill and massage your legs freakoid.... i hate it when i verbally abuse my SELF

    2 Recommendations

  • Journal Entry for January 12, 2009

    Monday, January 12, 2009 | A Venting story

     
    Had a visit a few days ago from the health and safety environment officer.  My neighbours had a bright idea of calling them due to my son banging on the walls, which personally I found to be a bit - well lets just say not very neighbourly without having a chat with me first about the problem they were having.  He was banging for a good week and a half, but even so was not con...

    1 Recommendation

  • Challenging behaviour in fragile x syndrome

    Wednesday, January 7, 2009 | A Sad story

     
    Feel a bit sad this morning and tearful, not too sure how much longer I can cope with my son.
    He has been getting extremely frustrated similar to an animal.  Going for me really trying to bite me, scratching, couple of more holes in the walls and being fifteen he is very strong. (much stronger than me im only little smiles Michelle)  I have no idea what the trigger could be either....

    1 Recommendation

  • Journal Entry for October 26, 2008

    Sunday, October 26, 2008 | A Call For Help story

    Hi there
    my name is shannon i am a mother of 3 1 boy and 2 girls and expecting (lastone) so im hoping by joining this site i will get more information and more support with FragileX. i will now explain my situation, when i was 16 years of age i gave birth to a little boy name braden.. yes i was very young and because of that family services came and apprehanded him at a very young age, as time wen...

    1 Recommendation

  • your invited to my Pity Party!

    Saturday, October 4, 2008 | A Venting story

    Well i went back to smoking! I know im very disappointed in myself! im on a couple of dating sites! i really dont like to do that but im so lonely i never go out so i figured that would be the only way to meet anybody! My son Conner( 5 yrs old) is handicap he has fragile x syndrome and he broke his foot and i have no support from anybody so im going out of my mind! he's driving me crazy! he h...

    1 Recommendation

  • Seeking support/ help.

    Thursday, August 14, 2008 | A Frustrating story

    I recommended this site to a client I work for Gov. as Behavior Spec & Teacher. As much as I believe this site to be extremely helpful. Don't be afraid to talk to Teacher, policeman, anyone who cares and is around during your day to day activities. There are some wonderful caring people out there. Don't hold things in. Find someone to listen.  

    1 Recommendation

  • Medication

    Sunday, July 13, 2008 | A Call For Help story

    We recently took our son Caden off of Risperdol.  Weren't happy with the results.  We have heard of the medication Abilify and were wondering what are some of the side effects and how has this medication helped.  Caden is 15 and going through puberty.  Is this a med for someone that is younger or does that matter?

    1 Recommendation


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