What is Fibrous-Dysplasia
Fibrous dysplasia is a disease that causes growths or lesions in one or more bones of the human body. These lesions are tumor-like growths that consist of replacement of the medull...
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Ask an Expert
Posted in
Aches and pains, swelling, clicking, popping and soreness in our
joints and muscles are common complaints in doctor's offices and at
dinner
... Read More »
1) Do I need an annual physical?
As many of you know Medicare does NOT cover annual physicals... so the ... Read More »
If I had a dollar for every time I hear this from a patient I could save our economy. This is a serious and disabling complaint we hear from ... Read More »
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2 steps forward....and 1 back..It's going...al...
inapatti Nov 06, 2009
2 steps forward....and 1 back..
Friday, November 6, 2009 |
2 steps forward....and 1 back..
It's going...allright...but things could be better...
since a couple of weeks more pain...(it comes up when I walk, stand too much..)
so I have to walk with 1 crutch..(kruk) walking thing...dunno the name right now..( i am a dutchie)
Well guess i want it all too fast..
Working again....but that's not going well...
I thought I could handle the whole world again......
1 Recommendation -
I am now a little happier and a lot more in ...
holeybones Sep 27, 2009
Journal Entry for September 27, 2009
Sunday, September 27, 2009
I am now a little happier and a lot more in the hole. My transmission in my truck went out the first of the month. Well, between my brother I sold him a wood splitter for 500. and my mom I now owe her over 300. My husband and his friend put the transmission in and I now have my truck back. I am now picking up black walnuts to support my cigarette habit. I really think it is time...
1 Comment -
Just got diagnosed with R. Arthritis. Its makes me...
Toozi Sep 18, 2009
Friday, September 18, 2009
Just got diagnosed with R. Arthritis. Its makes me feel old and i might have lupus also. I am very angry that I can't be a normal person. I have to have all these things wrong with me. Im trying to be positive but its hard. -
The past few days have been horrible. I've bee...
Toozi Sep 11, 2009
A little bit of sunshine to brighten my day!
Friday, September 11, 2009 |
The past few days have been horrible. I've been in the hospital, and no one seems to understand. Yesterday the sun was out it was a beautiful day. I had fun playing with my daughter. We went to the park behind our house. Its funny how my whole day will be ruined because i dont feel good and then I play with ava and i forget about everything. She is such a blessing. We just had her 2nd birthda...1 Recommendation -
Today it has been two years since the best days of...
Toozi Sep 03, 2009
Happy 2nd birthday Ava! I love you!!!
Thursday, September 3, 2009 |
Today it has been two years since the best days of my life started. Today was the day my daughter Ava was born. SHe lights up my life with her smiles and laughs. I love when she gives me hugs and kisses and when I see her learn new words everyday. She is the best thing that every happened to this family.
Happy birthday sweetie
love mama!
another subject i woke up its 3 am and my toes are curle...1 Recommendation -
I have my good days and my bad days. The pain neve...
Toozi Aug 27, 2009
Just one day pain free would be nice...
Thursday, August 27, 2009
I have my good days and my bad days. The pain never goes away just sometimes its a lot more bareable. I just have to keep my mind busy and remember that I am here for a reason. God has a plan for me otherwise he would of left me for dead a few years ago. It seems it is easier to tell people to do things then to listen to my own advice. For tonight i am going to go to bed and hand everything over ... -
I haven't quit smoking I failed and I will try...
holeybones Aug 26, 2009
Wednesday, August 26, 2009
I haven't quit smoking I failed and I will try again -
it is so hard some days to even want to attempt to...
Toozi Aug 25, 2009
Tuesday, August 25, 2009
it is so hard some days to even want to attempt to get out of bed. But just seeing my daughter smile at me and hug and kiss me gives me a reason to wake up in the morning. -
i have been trying to keep busy to get my mind off...
Toozi Aug 25, 2009
Tuesday, August 25, 2009
i have been trying to keep busy to get my mind off the pain. I have a wonderful man in my life and he supports me a lot. He went to my treatment with me to keep me company. Just when I kind of accepted that My life is not going to be normal. I have a new symptom. I have the tumors in my back and ribs a total of nine. I have polyosoticfibrous dysplasia. which jsut means more then one. So I h... -
It is going very well.The stuff they used is growi...
inapatti Aug 22, 2009
Saturday, August 22, 2009 |
It is going very well.
The stuff they used is growing good into bone material.
And I am able to walk a couple of hundred meters without crutches.
My next visit tot the hospital will be in november..
So I am happy!!!!!!!!1 Recommendation -
I am still walking with crutches but i make a lot ...
inapatti Jun 30, 2009
Tuesday, June 30, 2009
I am still walking with crutches but i make a lot of progress.
It's sure nice to be able to do things after weeks and weeks in bed and wheelchair.
Next week i have to go to the hospital...hopefully it will be all oke...so I can learn to walk without crutches...
hugs Ina ( all the way from Holland).... -
i am in my count down mode, im very anxious to get...
brokenbut... Jun 30, 2009
Tuesday, June 30, 2009
i am in my count down mode, im very anxious to get surgery over with and hopefully start feeling normal agian. my syptoms have gotten worse and new ones have shown up, i have more questions about my surgery than i do answers, im still not sure how they will cut me , how long it will take or anything... im really going in blind sided but then maybe thats good.. it is less for me to worry abo...5 Comments
2 steps forward....and 1 back..
Friday, November 6, 2009 |
2 steps forward....and 1 back..
It's going...allright...but things could be better...
since a couple of weeks more pain...(it comes up when I walk,...
It's going...allright...but things could be better...
since a couple of weeks more pain...(it comes up when I walk,...
1 Recommendation
Fibrous Dysplasia Information
Fibrous dysplasia is a disease that causes growths or lesions in one or more bones of the human body. These lesions are tumor-like growths that consist of replacement of the medullary bone with fibrous tissue, causing the expansion and weakening of the areas of bone involved. Especially when involving the skull or facial bones, the lesions can cause externally visible deformities. The skull is often, but not necessarily, affected, and any other bone(s) can be involved. Many patients have lesions localized in only one bone (monostotic, affecting 70-80%), but others have them in many bones (polyostotic). In 3% of cases, people suffering from fibrous dysplasia also have endocrine diseases and skin pigmentation; the three together constitute McCune-Albright syndrome. Fibrous dysplasia is very rare, not much is known about it, and there is no known cure. However, it is known that it is caused by a genetic mutation that occurs sometime during fetal development, and is not hereditary.
See more Fibrous Dysplasia Information.
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