Fibromyalgia Support Group

I am so sorry you are having to experience this! I also have hypothyroidism, and the best information I can give you is to never, ever, skip your thyroid medication! I have been taking it for almost forty years, and I have learned the hard way that missing just a dose or two really makes a difference in how I feel. This is much more apparent to me since I have had FM. I have run out a couple of times, and it really lays me low, so be sure you get your refill early. Hang in there, I know this is a hard time for you, but as you learn what to expect and how to deal with it, it will get easier. Gentle hugs.

Hi Barker, Welcome to DS you will find many kind and understanding people here. There is so much wisdom here to share. I am so sorry you have to fight this horrendous disease it just stinks. It is horrible to live with but we here are fighters and we help each other find ways to cope with all of it. Just knowing someone else understands why you are here and know it is not all in your head. lol

Hi,
you are at the right place for advice and support, of course everyone is different with pains and pain meds but maybe you can get something that would help you. I have had fibro,arthritis,gen.anx for many yrs, I had the official diagn. this year and started with lyrica which didnt work well for me, now on savella but it causes severe upset stomach at first and for me mild relief. I also take lexapro for anx and depression which does help. Good luck to you and keep insisting you be treated until you are comfortable with your meds.

Hi, and welcome to the board!! Great info and support here...I've learned so much since I joined in!

For me, I take a muscle relaxer and anti-inflammatory at night, plus lots of supplements (see my journal entry for Nov 27)...that helps with my fatigue and pain control. Plus light exercise and plenty of sleep!! Try to reduce any stress as well.

Everyone is different with FM...it takes a bit of time to figure out what will work for you...

Good luck and HUGS from down south :)

I'm sorry that you're having such a hard time with all of this. FMS is in itself painful. Add hypothyroidism or any of the other things that we all seem to have and we're very miserable.
The "having to spend days in bed resting" after doing even the littlest of things also really bugs the heck out of me. I was such an energetic person and it's irritating to not be able to DO things. Watch out the clumsiness. A lot of us have problems with that too. I personally just fell off a foot stool (step ladder type) and bruised myself up pretty badly. I don't know why we get so clumsy, but we do. I hope you get help soon.

I'm so sorry about your diagnosis. I was just diagnosed in September. The pain was unbearable. I was having a flare every week lasting for days. I even have a permanent handicap placard for my car. There are 2 things that have helped me tremendously. First, my rheumatologist tested my Vitamin D levels. I was VERY deficient. I now have a prescription for Vitamin D which is very beneficial. Second, my pain management specialist gave me Neurontin to help diminish everyday nerve and muscle pain. I HIGHLY recommend you look into Neurontin. Since going on Neurontin over 2 months ago I have only had 3 flares. A huge difference. I also had a sleep study that found out I have NO REM/Restorative sleep until about 9 hours of sleep. I need at least 12 hours of sleep a night to function. Sleep is key, whether you have a sleep disorder or not. It helps the body heal and restore itself. I also do yoga as much as I can. Don't do anything strenuous. Please feel free to write me or add me as a friend. I feel your pain. This is the best group and can offer great advice. Hang in there.

Thank you all for taking the time to read and reply to my post. My new Dr was not happy with the thyroid test results that my original Dr said were ok. The new Dr has doubled my dose of thyroxin, which I started yesterday, and today I do not have as much pain. Is this associated or am I just having a good day? I would like to hear your comments on the association on hypothyroidism meds and fibro.

So happy to hear you are doing better !

Hi Barker,
I pretty new on here too but I've found it a blessing and very uplifting.
I hope & pray you will continue to feel better with the control of the tyroid. That would be AWESOME!