What is Fibromyalgia
Fibromyalgia (FM or FMS or Fibro) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue...
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At the end of my rope...
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I am in so much pain, tired, nauseated, you name it. I know many of you are, too. I thought having a diagnosis would make a difference, but it hasn't. My doctor is uncooperative. I have to beg for help. I was dx by a wonderful Rheumatologist, but he doesn't treat FMS--sends you back to the Family Practice doc. If she had listened over the last several years, she might have connected the dots. Migraines, dizziness, irritable bowel, fatigue, pain EVERYWHERE...what would it take? Hitting her on the head with a rubber FIBRO MALLET? My family and friends (those who haven't given up on me yet for never feeling up to getting together or going out)still don't understand. How do I get it across to them that just because I have a good day or few days now and then doesn't mean I'm cured. I have a flare and I can see their exasperation. I don't complain--feel comfortable doing it here because you know what it's like. This is the first year I haven't decorated the tree or inside of house. My kids are coming home and I feel bad that I can't seem to get stuff out of boxes and on the tree/walls. I don't want to be in bed when they are here. I want to be with them and have fun. I hate this!
Posted on 12/16/09, 05:59 pm |
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I'm so with you today! I've got a tree up..just sitting there..no energy to go to the attic to get the decorations. One kid coming in from college tonight another arriving on 4 days, yet haven't been to the groc. store. I've bought 4 presents, went online to do some shopping today, was on a site looking for something specific and couldn't for the life of me remember what it was or who it was for! lol*
My kids have always loved the holidays, my insightful daughter said to me the other day "As a kid loved Christmas, the tree, cookies, parties, decorations, Santa...it wasn't until I grew up that I realized you were the one who made all that magic happen for us." Sorry about your doc., I've gotten used to knowing more about fibro then my docs., I go to their office with a file of info. larger than the one they have on me. Sending warm wishes & understanding to you. 
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I totally understand your fatigue and pain...sorry your doctor hasn't helped much. D-ribose and some other supplements have really helped me....I listed them in my Nov 27 journal entry. But hard to know what will work for everyone...
HUGS from down south :)
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Oh, I don't like seeing posts like this. It brings back so many bad memories. However, please don't feel bad about posting it, eh? It just tugs a little harder at my heart strings.
If you can spend a few minutes meditating here and there throughout the day, you can get a handle on what's happening with you and maybe think of ways to deal with it. Coping is what we do, whether with drugs, treatments or techniques. It's all we have. But you can do a lot for your peace of mind by calming yourself as much as possible, relaxing and thinking freely. Read the posts here and you'll come across a lot of helps.
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uggg I feel the same way!!! I think winter time is the hardest. my family is the same have a few good days..then they expect me to keep it up and pile on more things for me to do! its a two edge sword!
hope you get some energy when your kids come home. hugzzz
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I had a hard time with putting up my tree and decorations.. but.. me being of faith.. i guess I did it for that... and put my pain on the back burner.. which I know isnt easy.... it was what i call a "push" day...
when I was finished it was more like a job done then to look back and awe over my pretty tree... pain makes me so humm. trying to think of a word.... crabby..!!!.. good one.. I cry alot... guess the emotion of this horrid pain leaves your body to cry.... its just me and hubby for christmas.. My kids do their own thing I guess... has been that way for a while now.. I would love to spend it with my parents.. but they live 2 hrs away.. and our car is a beater.. so.. Hopefully i will find some joy on christmas day..and forget bout my damn pain and be happy for the birth of jesus... its 2am.. and Im up still.. did sleep alot today.. in fact took a 4 hr nap.. and thought it was morning.. eeee k...... blessings to ya.. :)
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See if you can get a dx other than fibro. Have your spine MRI'd. If you have any slipped discs, fusing discs, or signs of DDD you will be more likely to get pain relief from a pain doc. (You need a specialist.) Rheumy's don't usually do pain management. As far as your family, I understand what you are going through. People can't comprehend fibro until they've been stricken with it! Try getting them info on your condition and pain flares. Educating them may help and if it doesn't, don't waste your time trying to justify yourself.
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