What is Fibromyalgia
Fibromyalgia (FM or FMS or Fibro) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue...
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saw rheumatologist today
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for a follow up since i got off cymbalta 1.5 moths ago.
we went over my medicine history: effexor gave me tachycardia, cymbalta put my colon to sleep (numbed it), amitryptaline & flexaril made me plain SICK, can't take savella due to it's listed side effects of tachycardia and constipation, Lyrica just plain SCARES me..... must i go on?? did i mention that i'm still having withdrawals from cymbalta?!!! i told them that! guess what the doc said? "well i think we should just go with the natural solutions, EXERCISE and PSYCHOLOGY." WTF? i told him i swim several times a week and i'm still in pain i can't sleep right. he said "well the psychologist teaches COPING skills, so we;ll go with that for now" basically i just gotta "cope".... i'm stuck this way. but i did tell them i'm following up with neurology soon and they want to start me on topamax (in junction w/ the gabapentin i'm on). oh i can't wait to see NEUROLOGY! i don't even know why fibro is still treated in the rheumatology dept. they are USELESS!!! at least the neurologist is motivated to help and treat me. they great me with open arms! and ask me how i'm coping and is there anything they can do to help me, etc. anyone else having issues with ignorant docs in the rheumy dept? you know, there's more treatment than just meds out there that they could be tryin to get me! like water therapy!! i asked about it, and he just sat there and looked at me puzzled. i said i'm waiting to hear about it from my PCM and so far nothing yet! he COULD have said, "hey i'm gonna go check on that and make sure you get water therapy"... something's better than nothing!!!! anyways.... i'm still having withdrawals, so if any of you want to try cymbalta be very careful. this stuff is one of the worst nightmare-ish meds i've ever been put thru. and if your doc is an ignorant dude/lady then go to another doc. in my case, i'm just gonna forget the whole department and let neurology handle it. take care y'all and if you have any advice, i'm all ears! Posted on 11/17/09, 04:11 pm |
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I went to a rheumy a few months ago and I was NOT impressed. I feel like they contribute all symptoms to FM...they don't even want to investigate it. Then they say, "Well...you need to work on finding the little things that will help you. Like getting 8 hours of sleep. Not overdoing it. Getting rid of the stress in your life..." Well, DUH!!! I know that, but I still have pain even when I do all those things. The last rheumy I went to said that he was really shocked that my Dr. put me on tramadol right away. He said I should have started with less intense drugs like in the class of ibprofen....If ibprofen and tylenol worked, I probably never would have gone to a doctor about my pain in the first place.
Like I said...NOT impressed at all. I'm thinking of going to a neurologist. 
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The rheumy I went to wantd to try me on every anti depressant and cybalta like drug that came out. (all made me silly/loopy). I told him to give me script for ibuprophen and he did but said, then you probably don't have fibro, since advil type drugs don't work for fibro.
Wanted to see me every 4 months, I'd go, he'd have me raise my arms, bend over, touch the floor and say, OK see you in a few months, maybe we'll have something new to try. I've investigated on my own, found MILD exercise helps, stretching helps a lot, and creatine a muscle building over the counter has helped the most. Most of all, learned I can't sit or stand or be in one position more than 20 minutes. was hard to learn to pace myself. Good luck
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oh i forgot to mention that i'm still having brain zaps. do they ever go away?? i was telling the docs abut it and the med student and he said he never heard of brain zaps. i told him to google it. lol
i hate brain zaps and hope and pray they go away soon. if you've had em, how long before they went away (in your experience)?
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You know, I wonder about some docs....it's almost funny how many of us have the same experiences with them. I had one rheumy who was great! But she left the practice.
And God love the 90 year old rheumy I saw a few months ago! He was older than sin and completely ignorant of fibro! He didnt even mention the typical things you mentioned blue....which I already know of course. He put me on Lyrica and flexiril....I shouldve refused the Lyrica because Ive tried it before and it made me feel drunk, high, and mentally unstable all at once...but I was desperate! I was trying to stop taking Vicodin and do anything else. Now Im back to square one. I think we have to keep trying. Easier said than done tho...
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So sorry about your day, blue...For me, it was just the opposite!!! The neurologist I saw had absolutely no answers, but sent me to the rheumy only because of my elevated ANA....the rheumy diagnosed me, started me on flexeril and mobic, instructed me on exercise and pacing, and still manages my care...I see her once a year, unless I'm in a bad flare. Soooo maybe it just depends on the doc....
I hope you have better luck with your neurologist, and HUGS from down south :)
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U seen my Rheumy for 3 months straight after the 3rd month he said I have fibro gave me meds and said see ya. no appts, I was like what the hell!!!!!! ok while going to him I was self pay paying him 200.00 a pop and the first visit was 400.00, I feell like he was just using me for the money. I do have a neuro I was seein maybe I should make appt with him for this. I didnt know they dx you also or treat Fibro.
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brain zaps??? I'll have to google it too.
:)
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sorry your pain! yeah I think all docs say that when they don't know what else to do!!
I was having heel pain, he didn't look at my feet and told me I needed orthodics (sp) for my shoes. I asked him if it could be flare becuz they don't hurt all the time. he no you need orthos for you shoes and maybe invest in some ortho shoes. well my heel pain is gone now...I'm glad I didn't spend money on those expensive shoes! wish there was a fibro guru! lol hugzzz
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I hope the Neuro you are going to see will be able to help you. I have been on Topamax for 1 1/2 years with wonderful results, no headaches, no side effects. Hopefully it will work as well for you!
I took Cymbalta a while back and didn't have any problems with withdrawal but the doc started me immediately on Pristiq (anti-depressant). Possibly that is why. I hope you are feeling better soon.
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