Fibromyalgia Support Group

Hi kmbsaratoga, I am so sorry your having such a hard time with excepting of this, and what it all means. I wish I could find the words to tell you how to snap back in to reality, as you put it, but I just don't know. I too am struggling with this, and denial is such a strong thing. I think our brain and body goes into denial for a reason, and maybe its just better for us to be like this, for now any way.
I think coming to terms with this, is a slow learning process. I am still learning what this mean, and finding my way through.
One minute, I think ok. I got it, I am in control of what I am doing, and what my body is doing, lol oh ya right, until I am not, and then I get upset all over again, and denial is my friend, other wise some times I think I may go batty. Now this is my way, this may not be your way, or you may not see it this way, and thats ok.
If I have learn any thing, is the fibro maybe very similar to others, but its still very independent of others too. What works for one, may not work for the next person, and I think this is one reason this is very hard to figure out.
I sure hope others will come by soon, and give you better help or suggestions.
I am really struggling these days, with so much, that I can hardly think straight, so this is all I have to offer, and that I care, and I hear what you are saying, and can so very much relate.
Sending you some caring, understanding thoughts.
Gentle hugs, Sherrall

Hi kmb,

I was just diagnosed recently but I've never heard the stuff that doctor told you. I know there are the 18 tender points that they check and that we are more tender there than people without fibro. But, this guy sounds like a quack.

You know what I did? When I found out I had it, I did as much Google research as I could to get the facts. Then I found this place. The people in here are so caring and there is so much information and facts from people that actually have it and not just doctors and what they think.

I still haven't gotten it through my thick skull that this is life long and I hope when the day comes that I realize it, that I'll be prepared.

I have a daughter who is 24. Two years ago she was attacked by a spinal cord disease. Her whole life stopped. She can walk but her days are like ours - up and down - moment by moment. She has been in denial all this time because people kept telling her she would be healed. She is just know coming to realize that this might be her life forever and it's been real hard for her.

What we need to realize is that our lives aren't over - they've just changed.

Hugs, Terri

Well to be honest having had fibro for over 15 years + actual dx time... I dont think what he said was far off.... I Know I dont heal well. It took me 3 times as long for my broken foot to heal. I get sores and they dont heal for months, my muscels well dont get me started on them...

Peeps with fibro dont get the deep rem sleep required to produce growth hormone. With out growth hormone you dont regenerate the muscels that get broken down in the process of usin them. I dont know if the preasure points get injured some how or if they are just spots we use a lont that dont regenerate but it makes sence. I know when I am on my trazadone I dont need my pain meds as much because I get better sleep. Its not perfect sleep but at least its a couple less pain pills a month...

i was told in 1995 to quite work that isi didn't io wold be in wheel chairin 10yrs its been 10yrs since last injury & thats why i have not had nurerious sirgery cause the doc in 1985 said my body does not heal from injurys been in 8cars accidents(never driving lol) & 9-14 serious work injurys this last one did me in! i can just pick up a ink pen & spraing my wrist slightly step wrong & get a sprained ankle bruise's all over my body! suppose to see surgean on monday to f double capel tunnel & tendon release on both thumbs afraid to have it done! will look for second opioion!
i'm sorry you are having such a hard time =it has taken me 9yrs to face the factthat i will always be in pain & just have to take everything slow & not worry about anything anymore take ea moment asit comes & have elimanted anything stressful in my life friends & yess family!
healing prauyers & angels to watch 7 guide you
oxo
paula

Oh my gosh! I didn't know about the healing problems. Since it's all so new to me, I haven't had to deal with that yet. Not looking forward to it but glad to have a heads up.

Thanks for the post...it helped put in a piece of the puzzle for me ! Now I get it !

I would say for alot of us our bodies don't heal because we don't get the correct stages of sleep that allow for healing so he is not so far off. If you haven't had a sleep study I would ask for one because alot of us have aleep apnea and problems with the different stages of sleep. Also have him check your vitiam D and B levels alot of us are low in these areas. Hopefully more will be coming out about the XMRV virus link and other research.

Hugs

well...that may explain wgy we are tender in SOME areas...but certainly not All areas..Like I have never once Bruised or bumped the Insides of both my knees..

and Where they test...is about the same for us All...I cannot ever recall bruising or bumping the outsides of my thighs either..

actually I did NOT have these Bruised Feelings until the Morning I awoke from having a Surgery in 2004...

so that makes no sense to me...I understand Fascia may get tighter, more Tender in over used or Bruised areas...and may not Heal properly. hell if the bruise was bad enuff perhaps there may even be a bit of Scar tissue...idk..but the fact is, when ya go in to get the "Tender Point" test done...we are all pretty much Tender in the same Exact Spots..

This tells me it is Lymphatic, or Vascular to some level...

I don't think this guy explained it well at all. My bruises i get is from lupus. Fibromyalgia ia a poor name for what we have. its a neurological order. The pain is cause the brain is all screwed up. Bonnie chronic myofascial pain is totally different from fibro. something can be done to help that like myofascial pain release massage. True some do go on to develop CMP and it often goes undiagnosed. Thats why some end up in wheel chairs. Oh just wish they would give fibro a proper name. Bugs me. lol

I think your doctor is full of crap. I've never heard this. Aging makes us heal slower - not letting a muscle heal properly before working it again will make the process last longer, but not healing is not a part of FM.

For a doctor to say that you'l never heal is outrageous. I'd get another opinion.

The tender points aren't tender because of injury. Try googling Tender Points and while you're at it, google Trigger Points.