Fibromyalgia Support Group

And taboot I live with my so-called boyfriend who tells me there's nothing wrong with me,I LOOK FINE!!!One of the people you expect to support you,speaking of which even my family is starting to give up on me and thinking it's in my head.

Just hang in there till you get to the Cleveland Clinic. I think they will be able to help you. Ignore your boyfriend. Sometimes it's the people that are closest to us that can't handle our illness and are in denial. Maybe he could go with you to the Cleveland Clinic.

Sending Hugs and Prayers

Sweetie... you will make it through this. Trust me.

You know, to expect that someone we love and admire so much our sig other, spouses, family and so on, I've found that we are fooling ourselves if we want them to "really" understand. I think in their words....you look fine is their way of justifying it too. Meaning, they KNOW something is wrong....but what?

The numbness/ face thing/ feet thing...everything comes and goes. It's a blessing that there is "nothing more to it", yet on the other side of the coin, it's a curse...never knowing, never understanding. It seems to be the only constant with this disease.

You will feel like you're going crazy while all of this is happening. I was just there 2 days ago. I hit one of my all time lows. Yet here I am today, feeling better.

As for things you can take. I'm either intolerant or allergic to so many meds and I don't know how I feel about pain meds. I want them and don't want them all the same, so until I can decide...I'm going with out. I feel as though I'm punishing myself some days. But it's a personal choice for the time being.

Alternatively there are things you can do.
Boswellia (natural anti-inflammatory).

Lecithin granuals (boost brain function) Honestly this helps instantly. I just sprinkle some on my yogurt in the morning and I've decreased my brain fog in nearly epic proportions (well for me that is ;D)

Vitamin D..even starting out at 1000iu/ day...can boost your energy. And the more energy you have the less pain you experience.

D-Ribose (aka ATP) This is the energy found in your cells. For many people, this is restored...but for us it's not. I can only imagine this happens when we are sleeping. It's the only common denominator.
This comes in pill form or powder form.

Magnesium. This helps with muscle pain. I have to take it at night as it makes me sleepy. Others can take it when ever.

A good B complex = helps with pain.

I also take fish oil, the Omega 3s are vital for us. And I take a few others too. CoQ-10 (energy), Flax oil, multi vitamin....all in all it does make me feel like I can make it through the day.

I still have pain. I still get the occasional numbness, I still have the other varying Fibro issues. But it's tolerable. I've gone from feeling like I was going to die with in 6 months....to being able to live again.

I've learned on my journey that for someone to die....they must really be sick! I haven't hit that mark yet. But boy oh boy does it feel like it some days!

Hang in there sweetie. Just start finding the humor in it all. If your feet look funny....start painting them to mimic something....maybe elephant feet. Okay, that might get you a one way ticket into the psych ward. But be creative!

Hugs!

Wonderbaby,Lmao when I said marshmallow feet I meant they feel like I'm walking on sponges,off balance with the dizziness.That was a lot of useful information,thank you, do you take all those vitamins everyday?Thank you Maryca I just hope my body can hang in there til my appt.

Yes, I do take them all pretty much every day with the exception of the D-Ribose. I get a gittery heart and I don't like the palpitations I sometimes get. I only take that when I'm super fatigued.

LOL....I suppose you could just spin around and around until everything balances out. It'll be fun until you puke.
Seriously though....I have been loosing my balance a lot lately too. It's no fun. I could be standing and still loose my balance. My hubby just catches me, and I thank him like any damsel in distress would.

I guess my breaking point with the balance was when I fell into my mom's bathroom trash can (it's only 12" off the floor) and broke it. I still don't understand how I went from sitting doing my um, business, and falling off. I'm sure some fly on the wall is still laughing about that one!

Oh, and I was gonna add....you may want to start slow with all of these vitamins if you choose to take them.
If I was gonna start them, I'd start with the Boswellia (for pain) and Vitamin D....once you get used to that...try adding in another one or two of them until you find the right combo.

Do you have to drive yourself to the clinic? I was just thinking about when I had my brain MRI and how my doctor prescribed some valuim to relax me enough get me through it. If you don't have to be the driver, some kind of muscle relaxer may get you through the long drive.

Maybe its the ms acting up. Perhaps they could adjust your meds some more. You will be alright. hugs

I take xanax already and that doesn't always do the trick.My mom's taking me.I'll probably make it there on prayer or make her turn around I'll figure it out when it comes to that time.I'm nervous just thinking about it.

Needing I would encourage you to read the website posted on here for fibro action it explains allot of this and maybe something your boyfriend should read.

Take care my friend gentle hugs