What is Fibromyalgia
Fibromyalgia (FM or FMS or Fibro) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue...
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I am worried about 12yr old daughter
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I have noticed that my little girl Megan is showing signs of fibro. While sitting together watching tv, I thought I would touch a few of the trigger points on her and it brought her to her knees. She screamed out loud and i could tell she was serious. She said "MOM... STOP!!!What are you doing?!!"I didn't want her to know what I was doing bucause I didn't want her to pretend (act). I even did the same thing a few days later to my neice who is the same age and there was no reaction. She just looked at me like "what are you doing?"
I was wondering how many of you are tender headed? I maen it hurts to brush my own hair (BAD) and same for my daughter. That is what got me thinking, she (like me) can't stand to have her hair brushed or combed, nor does she like to be touched. Everyone has called her a "Drama Queen, Cry Baby, and Sissy bucause she is sensitive. And the more that I think about it, it sounds like fibro. It is bad enough that she has type 1 diabetes, I would hate for her to have to deal with this too. Please say a prayer for Megan. Thank You. Posted on 10/29/09, 11:10 am |
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Oh, she's the one on the left. 
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Yes, I am very tender headed also. I am also very tender on my: shoulders, back of the neck, arms. I have had fibromyalgia and polymyalgia rheumatica for the past two years.
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I really feel for you, and your daughter.
But the one good things she has going for her is, she has you, and you will not deny her pain, or just brush it a side. I think it really helps, when we have some one in our corner that believes us, and doesn't just tell us to suck it up, or say your fine, when it is parent she is not. Just keep loving her, and that is more then lots of us get, and what will be will be, but with your love and understanding she will grown, and understand, that she is worthy. I really wish I could some how take all the pain we feel away, but I can not. So we just need to do our best, and know we are worthy. Gentle hugs, Sherrall
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I think maybe would be a good idea to have her checked out by a rhuemy doc. and let them know your concerns of her possibly having FM. I pray she does not.
Yes my scalp is tender to the touch. Seems to be mostly on the top of my head. Because I have curly (permed) hair I use a pick to comb my hair and do not notice it as much. Take care gentle hugs
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I am sure my symptoms started at a very young age. Good thing was that the pain was minimal and most the time it was just called growing pains... it wasnt and the pain didnt get bad til my car accident at 17. Does she complain about the pain??? If not I would let to go and just keep an eye on it from a distance. Sometimes kids will play into it if they think they can, plus you dont want her to have to suffer the emotional crap of having fm just yet she has a whole life for that. Besides if she isnt complaining of pain what would you have docs do? There is no early preventative meds and if she isnt complaining of pain would you have her start pain meds just yet??? Keeping in mind if she does seem to have a down day encourage her to rest.... talk about fibro and let her know your there if she ever hurts
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bugbite, she does and has complained of pain since she was about 5 years old.
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I started noticing symptoms in my daughter about that age. It definitely has changed how I raised her. She knows more about food and nutrition than any 18 yr. old I know. She also practices yoga on a regular basis. I started talking to her about it when she was about 17 - keeping my fears to myself until then.
You know what she said? "Yeah, I kinda thought I had it but I didn't want to sound like I was just trying to copy you." Since I've never hidden my FM from my kids - we have fibro-discussions at the dinner table and treat it just like any other issue we deal with - she knows a lot about coping with FM. Lets just pray the cure comes before they have to suffer too much. The younger girls really seem to get hit hard with this.
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My son is showing some of the same signs. I asked the dr. about it and she said that children can mimic their parents. That was her explanation without asking any further questions. Makes me mad. I guess time will tell....nothing we can really do except maybe make some diet changes. In this early stage of life that might make a big difference. Maybe I'll make that my next research project: Kids with Fibro. hmmmmm
I hope your daughter doesn't have it.
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Fibromyalgia can be passed to children. Especially the girls but boys can get it too. Take her to the rhuemy. hugs
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I'm with BugBite on this one. I also had pains and symptoms that started at a very young age (first I remember I was 6) which was just brushed off as growing pains, I has tender headed, etc etc, to brush over the pain. However, I'm glad it was brushed off - the pain I was in wasn't unmanageable, I found ways to deal with it - and found ways to brush my hair without being in ridiculous pain.
If she starts complaining of pain preventing her from going to school, or pain that is bad enough to affect her every day life - then I would leave it. As BugBite said - what can a doctor do for her - other than start her on meds really early. Try changing her diet - I noticed that as a kid, my symptoms got better (less "growing pains") when I was eating salads and more healthy things. I send good vibes for your daughter. And just watch her, make her understand that you will always listen, but unless she makes a big deal of it - you don't need to. *hug*
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