Fibromyalgia Support Group

I wish I knew what to say people can be very strange. Sending Hugs and Prayers that you get the help you need.

Hugs

I certainly know what you mean, people have no idea what we go through on a daily basis. Not even our families, mine can't see past the physical side of me which is very obese and I'm having gastric bypass soon. They don't get we can't function as we used to. I used to love to read now I can barely read 3 pages before falling to sleep and then I wake up and cannot comprehend what I read. It is pretty sad that I read a couple of pages of a book my therapist wants me to and when I go to an appointment she has to explain to me what I read. This of course is on top of the pain, stiffness, fatigue and what ever any of the other symptoms you may be suffering from at the time.

I so get what ya saying.....aint it the truth...huggs...

WE understand...completely! and I isolate myself too...it's way less hassle and stress trying to explain something that most people can't understand, disbelieve or don't care about...sad but true. Have a better day!

Unfortunately, I think most of us here have experienced the same thing. I'm finding this is about the only "safe" place to talk about fibro - anywhere out in the "real" world is taking a chance.

Warm hugs,
Jan

I'm new to all of this and my family is trying to understand but I'm trying to let them know that I'm not "complaining" or whining" - I just want them to know what I'm going through since they can't see it.

The other day I was talking to my 2 daughters about it and started rubbing my arm and it felt bruised. I was ready to tell them "See, here is a new place that just started hurting" but before I said it, I looked down and I had been rubbing a huge bruise that happened when I got blood drawn - 2 weeks ago. Fibro fog? (sigh)

I've told some people-to try to explain why I'm not at the top of my game- why I can't remember stuff, why I'm so unorganized, why I don't do things because I feel like crap so much- and no one gets it. My husband is finally starting to feel sympathetic when I am completely useless and need help- but he thinks I just need to eat better and exercise and be positive and I'd be fine. My mom actually told me yesterday that I needed to eat more leafy greens to be better and to lose weight and that she doesn't believe fibromyalgia is a real thing-and in effect- invalidating who I am. Not enough people have heard what fibromyalgia is and what it does to people- they just don't know. My best friend (who's about to lose her first place status) actually compared me to her mother in law who has fibromyalgia- but is also stone cold crazy- in effect saying I must be making this up and has said things to the effect that I should just pray more. It's useless to tell anyone.
It is very interesting, though, that my mother in law has had fibromyalgia for a couple of decades- and we certainly thought she was being a big wuss when she wouldn't babysit or wouldn't carry a bag of groceries. I admire the fact that she had the balls to take care of herself- even if it meant saying no to others- and I envy that she had the luxury of being able to do only what she needed to do and didn't have to clean or work- I have much more empathy for chronically sick people now- I think about it a lot- I really appreciate the good days and moments so much more now.
We want everyone to understand and cut us some freaking slack, to make life a little easier for us, to be taken care of sometimes- We have to be our greatest support- and love ourselves and not feel guilty and not feel bad when we can't do it all- or when we can't do anything. We have to learn to take care of ourselves first and cut ourselves some slack, to let go of expectations we once had for our lives- that's where it needs to begin.

I think when people see you living everyday life they think your ok. But your not and they dont want to have to deal with it as long as you look fine. Sometimes family dont want to face reality because they know they could loose you and they are thinking themselves more than you and your feelings. When you cant take it anymore than they will start to pay attention. But until then you hang in there and show them you dont care about what they think, you know how your feeling and when worse comes to worse tell them you dont need them if they couldnt be there for you when you needing them the most. Guilt trips are your payback...take care of yourself and dont worry about others. Your the one that important not them. I hope you get better and pray for them because they may need it more than you. Remember God says vengous is mine. God bless and prayer with you. Susan

Hugz I feel the same xxxxooo's