Fibromyalgia Support Group

I've read articles that associate fibro with the autonomous nervous system.....so I guess it's a possibility....who knows??

Tiger is confused too!!! :)

Thanks for sharing this. I guess I am unsure to many things carry the same type of symptoms I guess but thinking doctors must know of this syndrome so hopefully is some difference in it that they would pick up on it while testing. Most possibily tender points exams and things like that may be part of the difference ?

Take care gentle hugs

It's part of it. Everyone gets different symptoms.


http://nfa.convio.net/site/News2?p...

That was interesting undki.. thanks for sharing the additional information.

take care gentle hugs

Hey Guys, My Endo and Rhuemy share the same office and I was being treated for Fibo and Lupus Evalations and My Endo was also there and I was just told I have Dysautonomia after many years of seeking a diagnosis at my last Endo appt. It's a breakthrough, i think the Rheumy figured it out who was treating me for Fibro that i have Dysautonomia!!!!!!! I am taking Florinef and it works great, but there are quite a few medications used for Dysautonomia and 4 types of it. I hear everybody reacts differently with Dysautonomia to different meds for it. I just got lucky and i am doing waaaayy better! It is a breakthrough, My IBS, GERD, Heart Palps, Dizziness, vomitting and Fatigue all went away. But I still have dealable issues that are maintenance and work. It's just high maintenance at times! LOL! Yes ---- FIBRO IS DYSAUTONOMIA! I found a great article pretty much explaining forgot what the disease was..doctors did not transfer the info to their future counterparts but it as taken to very seriuosly in the early 1900's! Read this article....amazing info!

http://heartdisease.about.com/cs/w...

Hi, I am new to this group, but have been reading some of the discussions from time to time, this one is of importance to me.
From the article that Funky gave us, it states...
"And the diagnosis they are ultimately given depends on their predominant symptoms and which specialist they end up seeing.
Thus: Those whose main complaint is easy fatigability are likely to be diagnosed with CFS. Those who pass out are labelled as vasovagal or neurocardiogenic syncope. Those whose resting pulses are noticeably high are said to have IST. If dizziness on standing up is the chief problem, POTS is the diagnosis. Diarrhea or abdominal pain buys you irritable bowel syndrome. Pain elsewhere ends up being fibromyalgia. Whatever the diagnosis, however, a dysfunctional autonomic nervous system almost always plays a major part in causing the symptoms."
I was diagnosed with Neurocardiogenic Syncope (NCS) in April of 2006 by a cardiologist after fainting many times, so my GP sent me to a wonderful cardiologist. I was also experiencing pain and numbness in my hands, wrists, feet and ankles. At that point, it wasn't all over my body as it pretty much is now. My first Rheumy was helping me so I found another. I was diagnosed in July of 2009 with Fibro.
Let me say that the two are NOT the same, but were written in this article as a group of "syndromes" so to speak that share a common problem of being considered by some doctors as being all in our heads. I have been fortunate to find two great specialists who are helping me. NOT all people who have Fibro will get NCS or POTS. Each of these states illnesses that have the same problem of there being multiple symptoms that come together to make the diagnosis and are believed to be caused by the autonomic nervous system.
I started another group last year for people who suffer with NCS.
Check it out here to read about symptoms and how people suffer with it: http://www.dailystrength.org/group...
Hope this helps! And pardon me for going on and on.
Gentle hugs,
Pam

yep POTS here too....its awful,,i have been on Florinef and all sorts doesnt work for me..keeping upright as long as poss and keeping my calves fit for pumping blood back up to my head is what i try to do...its awful when i get it bad...ive had it for ten years..and i had no idea what the hell was going on...ya get pain in the abdo from the blood pooling when you are layed down...very hard to treat this part of the nervous sytem...i get better when im feling better with FM in general...when im sick im so intolerant to standing for long periods of time. it comes and goes like eveything else,,i"m always concious of it and when it hits i still get scared...huggs all..

"neurasthenia" is what I posted several weeks ago. I thought it's symptoms were the same as Fibro. It's exhaustion of the nervous system. I think maybe the reason our nervous systems test ok at the neurologists office is they they use "normal" stimuli. The nervous system missfires the information to our brains ? Or our brains don't read it or relay it correctly ? I wonder if they could do tests to figure that out ?

Ouchy, neurasthenia is what fibro was known as in the 19th century from what I've read. People took to their beds, rested for weeks or months and often ended up getting well enough to function pretty much normally again.

One thing that helps dysautonomia is to jump on a rebounder, the mini tramps. Somehow it resets the nervous system according to Dr. Paul Cheney, a CFS researcher. If you can't do that, any exercise will help.