Fibromyalgia Support Group

Welcome and you will make friends, no doubt about that. It sounds like you are on quite a bit of medications now and if you find they aren't working, talk to your doctor. We aren't professionals so we really can't say what you should or shouldn't take, but we can tell you what has or hasn't worked for us. Things are going to be better, just knowing what is wrong, the not knowing is so hard. Again, welcome

Thanks Gramy and nice to meet you!!

Welcome! i do not get meds, my epilepsy complicates everything, but I can usually control the FM with other things so I can live a decent life. OK, right now I am stuck in limbo because my eplepsy is now messing up my recovery from a spinal and pelvic injury a year ago.... but you get the idea!

Biggest thing to remeber is that everyone reacts to treatments very differently so if one thing fails, do not give up hope!!!

second biggest... FM is sooo hard for nonFMers to grasp, and explaining it is hard. Tell them it is a neuromusxular disease that will leave you exhausted and in pain but it is not predictable, so if they see you have one good day they should not assumeyou are cured. Ask for help. and if they give you crap,well, some of us have found that dragging the naysayer to the doc with us opens their eyes and minds pretty well!!!

Hang in there, and we are ALWAYS here!
Smiles,
Leo

Hey, I am new with this Fibro stuff as well. I take either hydrocodone or tramadol . but the morphine prob works better then those. Celebrex is another one you can look into. ~Kori

Hi and welcome; you are in the right place. This community is a great support system. I would recommend that you read as much as you can about fibromyalgia. There are many great books written on the subject that have tons of great ideas. When I was first diagnosed I went to the library and grabbed a ton of books.

I have a treatment plan that consists of a wholistic approach. I have assembled a team of doctors that understand fibro and that are supportive. (neuro, fibro doc, massage therapist, accupuncturist, etc.) I take a ton of supplements on a daily basis and use tramadol for pain. I have a portable jet spa on the side of my tub to help ease sore muscles and I use it often. I use various rub on creams as well to ease pain. (arnica oil, biofreeze, etc.) You will have to experiment to find a plan that works for you.

Best Wishes to you!!!!

Thanks so much Gramy,Leo,Sweet Heaven and Cocoa for all of the great advise. I guess that I need to do some research and help my family to understand this. I am in the Chronic Pain group also as I have DDD in my cervical spine with 3 fusions and had 5 bone reconstructions in my feet with another one soon and carpal tunnel both hands with OA in my left joints. FUN FUN FUN! Take care and thanks for the impute!!!

welcome! i had all over stinging pain from the chest down 2 years ago. i heard about savella from this very forum. i started a low dose; iwoke up one mrning several days later and 80% of the pain had just dropped off me! when i increased to full strength, nearly all the pain was gone! it has an appetite suppresant, so i was able to try a better diet and even lost weight as a bonus! give savella a try; you never know! and welcome. i'm returning to daily strength after a couple of years because i miss the support. you'll def. find it here!

Sorry to hear we have another fibro sister. Sounds like you are on a good combo of meds. Not many docs will prescribe narcotic pain meds so you're pretty lucky.

The diagnosis is just half the battle. Finding what works is just trial and error and I still haven't found much and I've had this for 14 yrs now.

I've gone through so many stages desperate for answers and relief and trying to come to terms with knowing I'll be in pain for the rest of my life. I had such an active and fulfilling life before I became suddenly ill.

I tried so many diets, supplements, doctors, and different med combos that I spent my entire $100k in savings trying to get well. Now I think what a waste that was because I need that money now.

It helps so much to have people here who understand.