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Discussion:
OMG the pain!!!! What is going on?!?
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It's been a while since I've posted, it's been an insane year. I was dx with fibro in April of 2011, as most of you probably already know, but what you don't know is that right around the time I was dx, my husband became severly depressed over some things that some how creeped back into his head from his past. We finally got him help and now he's on meds, he's doing a million times better and now I'm left with the last years scar all over me. It was hard listening to the things my husband would say to me, the accusations he'd make without any reason at all.

In the last year I lost my best friend, my sister, no, she didn't die, she just quit. She got mad at me for something really stupid and hasn't spoken to me since, she also moved clear across the US. She and I were best friends, we hung out every day, we actually BOTH moved so we could live in the same neighborhood, 1 street away (not even a full street because we lived at the end and they lived at the end)! I babysat my neices every single day and they were like my own children! Now they're gone and she has another baby (which she told me she was prego before anyone else, she was actually really compasionate about it, she knows I won't more kids, but can't have any so she wanted to make sure I was the first to know, to give me time to be upset or sad if I needed) that I can't see, that I don't know if or when I'll meet

In the last year my uncle passed away from lung cancer, that was actually only on 6/10 so it's still fresh. I didn't see him but once a year at our Christmas party (sometimes more during bday parties and such), but whenever I needed him, he was there and I miss him so much more then I ever imagined.

In the last year we lost our home because of this stupid MONSTER who took so much of our money trying to find what was wrong and how to fix it (which I now know isn't possible). We've moved back in with my mom who steals my pain meds and every oz of sanity I have!

In the last year we've become so broke (because my husband's work has cut back hours, in order to keep from having to let some people go) that I started selling nails (I design and sale them) and I have yet to make a penny! Even though everyone ALWAYS says how much they love my nails and I sale them really cheap!

Here we are, today, or more the past few days. Everything that has happened over the last year is just sinking in because I wasn't able to really grieve much of anything, much less the loss of myself, I started to before my husband became depressed and then all of my energy went into trying to make him happy, trying to make him understand that there is NO WAY I could cheat on him, not only because I love him too much, but I can't even get out of bed most mornings! They've switched my meds around AGAIN and I am HURTING, more then ever. I wake up every morning so swollen I can hardly move (thank God it's summer and I don't have to wake up and get the kids ready for school), my nightmares have returned full force so when I can sleep, I wake up scared and sad and wishing I hadn't slept, sleeping has became a double edged sword. The pain is becoming more and more unbareable and over the past few days have had to take 4 pain pills a day instead of my usual 3, which of course will get me into some major trouble at the end of my 30 days! But my pain doctor is incredibly stupid and refuses to understand that 3 just isn't enough, 4 would work and I don't think it's too much, but I could be wrong!

I woke up today and just cried, I am SO sick of hurting like this, I thought the pain was being managed pretty well (for the most part) and I NEVER imagined it would get this bad, I'm sick of the nightmares and the off and on sleeping, I'm sick of taking these meds that make me cloudy, but still do'n't take the pain away (completely, they do help SOME). I don't know what to do anymore! I feel like I've become lost in this body, this swollen, painful, unwilling to do ANYTHING I want it to do anymore, stupid body!
Posted on 07/01/12, 09:48 am
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Reply #1 - 07/01/12  12:00pm
" You've taken an important first step in writing it out here.

First, make the effort to keep hydrated. Mild dehydration will make your pain seem more heated, and it will bring down the temperature inside naturally.

Second, separate the pain, the fear, the feelings into their own slot to help you sort through the priority of what you want to work with when.

Third, keep track of what works naturally. This will help you have a basic starting point for any activity and be comfortable making choices.

Hope this helps. Best wishes reducing the pain! "
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Reply #2 - 07/01/12  3:27pm
" If you haven't already had one I'd ask your doctor about a sleep study. Sleep can have a huge impact on pain levels. "
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Reply #3 - 07/01/12  5:42pm
" I've thought about that actually, my problem is I can sleep, especially with the elavil the put me on, but when I do sleep, I have horrible nightmares. I've had nightmares as long as I can remember, in fact I remember nightmares I've had at 3 years old. These nightmares aren't like Freddy or Jason chasing me, they're REAL, like being in the middle of Pearl Harbor or watching my children die right in front of me and not being able to do anything about it. They are HAUNTING and they make me never want to close my eyes again! When I was younger, before I had issues with sleep, I could manage somehow to wake up and wouldn't have to see how 'this one' ends, but with meds to help me sleep, I sleep through them and they go on and on and on and when I wake up, I've just watched a horror movie starring everyone I've ever cared about, except I can't close my eyes to miss the bad stuff! "
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Reply #4 - 07/01/12  5:46pm
" Good suggestion, Peace. I found that I have sleep apnea and getting treatment has made a huge difference. Still hurt, but nothing like before. "
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Reply #5 - 07/01/12  5:53pm
" my husband has sleep apnea as well! "
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Reply #6 - 07/01/12  8:19pm
" Ya know the water thing is a good suggestion. I forget about it, but it does help take the pain down.

You are in a bad spot in life. Everything is going wrong. You will remember this year. But sometimes everything can go right. I hope you find a little peace of mind and give yourself at least 5 minutes a day JUST for you "
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Reply #7 - 07/02/12  1:39pm
" I feel for you. You are in a stressful situation and have endured some emotional and difficult things. that doesn't help pain or energy levels.and can make things worse.
I agree with trying to find some time for yourself to nurture you. A quiet bath time. Bubbles, music. I know it is not much. But other things maybe out of your control but doing something nice and special for yourself Is not.
Avoid toxic people and interact as little as possible with them. Avoid conflict and arguments. Breathe and walk away if someone pushes your buttons.
Take time to grieve your losses. And do not carry all this on your shoulders. And sharing here is one way of unloading. You can not take care of husband or others. And if your husband does not believe you then that is his issue and insecurity problem.. Don't waste anymore time trying to convince him. It is his problem not yours. You have done your part in sharing your love and being honest with him. He has to trust what you say and start being supportive and loving towards you instead of accusing. You have to take care of you.

I hope somehow things can improve for you Health wise, finances, relationships. And in the meantime you can find some peace in the midst of it all. Cry and cry if you need to. Just let it all go and out of you. You need it out rather than holding it in.
And hang on to the hope that things can and will get better. "
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Reply #8 - 07/03/12  12:55am
" Compartmentalize as best you can, rather than look at the whole dung heap. Get a portable lockbox or safe for your pain meds. Al-anon might really help in learning boundary setting sentences and actions to keep those near you from running over you. Doesn't matter if alcohol is involved...pain meds, there you go. Check out some meetings, and it will get you out of the house--bring a cushion for the chairs. Spiritual reading and deep breathing. I got some guided relaxation albums on itunes--Judith Day and Lisa Guyman are favorites. Practice breathing into your abdomen, counting 4 on the inhale, hold 4 counts, exhale 4 counts,,,experiment. Stay connected with supportive people. Hydration was a great reminder. It's amazing how fast you can get behind on water. Focus on any area of your body that feels okay. Even if it's just your big toe and ask that it be open to help you with the pain. Sounds strange maybe, but it can help. Sit outside. It makes a difference and remind yourself what really needs to be done in each moment. Often nothing or just one thing. Take it inch by inch. Oh I feel for you. This isn't forever. Gentle hugs. "
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Reply #9 - 07/03/12  8:31am
" Sounds like you have been through a lot. Make sure to set time aside just for yourself every day. I usually find that walking the dogs helps. Often I will get on my stepper and watch Dr. Oz. Hydrating yourself is great advice. I try to drink a little coconut water daily and eat as many fruits and veggies as I am able too. Juicing works well for me.

Unfortunately, I have the tendency to overdo things and also have little help or understanding from my family.....I have to start remembering that I am no longer superwoman :))

Make sure you know your bounderies and stick to them.

My sister-in-law, recently almost died from side effects of all the medications she was on. They created a leak in her bowels, which went at first undetected, so she was put on antibiotics. When she wasn't improving and they discovered the problem, she had surgery just in the nick of time.
So, my advice is to manage with as little medication as you can. Meditation also helps.
hugs you tight and hope you feel better real soon "
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Reply #10 - 07/03/12  3:50pm
" Can you get a Counsellor (?sp) to talk to talking to a professional can reduce stressors which can reduce pain? "

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