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Discussion:
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So about a month ago I was told that my Rheumatoid Athritis test came out high and that I needed to see a specialist. I finally got my appointment and went to it yesterday. He checks to see if I have any inflammation and he says I do not. He believes that I have the pain, but since no inflammation is there that it is most likely Fibro. I just want to know what is causing the pain so I can start doing what I need to, to feel better. My hands, feet, knees, hips, back, shoulders, neck, and jaw all have pain good one day bad the next. I get headaches and I never can seem to get enough rest. I work at a desk so when I get up from a desk and go to get water or go to the restroom I feel completely stiff. Also, I will walk in a room to do something and totally forget why I am in that room. Do you think it is likely I have Fibro?
Posted on 06/26/12, 03:04 pm
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Reply #1 - 06/26/12  4:27pm
" From what you are describing, it sure could be...of course I'm no doctor but I have the same symptoms as you...plus a few others! LOL Did any of your doctors do the trigger point test on you?

Either way, I hope you find some relief soon! Sending hugs your way...gentle ones ;) "
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Reply #2 - 06/26/12  10:25pm
" Angel Belle Wow what a shock you must of had. I know I would. First I don't know if he was so quick to give you a diagnosis. Also everyone should get a few certain test before we say FiBRO! You do seem like you have the symptoms and I don't know why RA test would be so high and then you not have it. What you need to do is go to a Rhuemtolgist . I been to a lot them and I still can't spell them. If you need a referral for insurance reasons get one from you regular doctor. If you don't look for a Rhuemy that deals with fibro.You can always ask when calling. You need to the National test for Fibro. It consists of filling in alot of paper work and then have pressure points pushed. It painful to me. But you need to half a certain amount of I can't remember how many.
I was also had my blood tested for Lupus, and other autoimmune diseases. Also you would and should get your level tested for Vitamin B12, Vitamin D. Having low levels of these two can cause you pain to be worse. Especially nerve pain. It can be taken care of with vitamins supplements. I also take magnesium citrate 400mg. It recomended by most doctors. Also make sure you are getting your Calcium. Also possible you would like a second opinion about arthritis. Rheumy's deal with this also. I hope this helps. I wish I had known to do this when I had been searching. It seems so simple but I was diagnosised in the 90's in my early 20's so before that it was all in my head because fibro had just came out. Their are still medical doctors and nurses etc that don't believe in Fibro and it is really insulting because they will tell you your pain is psychological. That are just ignorant people. Don't take that from any doctor if you do have fibro. Also being tierd is normal with fibro but I also have Chronic Fatigue Syndrome. this is that I am always tierd yet I can't get any good sleep. Some feel it just a mixture of both so maybe that. My grandmother has RA and I know that she is in severe pain. I pray all the time to God not to give me that on top of Fibro. God Bless you. may you find an answer that satisfies you. "
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Reply #3 - 06/27/12  8:58am
" It was a rheumotologist that I went to see (or however you spell that lol) My aunt has Fibro really bad, he did not do a trigger point test, but he said every were that I said was hurting could actually be fibro, he prescribed me Amitriptilane or however you spell it at a low dosage to start seeing if that will help, he also ran some blood to recheck my RA levels and has me going in for an xray as well. Yeah I was reading online that you have to have like 11 of 22 or something like that. Of course I do not want fibro I hear it is painful and I see my aunt struggle with it. My symptoms started being noticeable within the last 3 years or so. I am 22 so I am hoping that maybe they will be able to help me in some way so I do not end up not being able to really get out bed like my aunt, hers started I guess about the same time as mine, but she did not get diagnosed until about a year or 2 ago. Doctor said the pain is very much real, but they are finding studies showing that the brain is not registering pain right and is actually causing this? Lol which if true sucks to think because you are causing yourself pain and none of us want this pain lol... Is there usually like a trigger that starts the process of Fibro? "
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Reply #4 - 06/27/12  10:28am
" You can have Seronegative arthritis without inflammation. There's a test called the Patrick's Test that your doctor can do to see if you are positive. Ankylosing Spondylitis also mimicks Fibro and there are a few tests for this, one which can give you a false negative, so you have to check numerous ways. Myofascial pain is my worst, and I get hubby to use a percussion massage on my whole body every night. It's the only way I seem to get any relief. Have you been tested for sleep apnea? The overnight study is the best and you may need a CPAP machine.

Have you had your B12 and D vitamins checked? A lot of us are deficient in these two, and will make you feel extremely fatigued if you are low.

I take Melatonin at night for sleep and that seems to help. I used to have bad insomnia about 5 times a week, now it's about 1 day a month. "

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