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This may be OT, or even a vent from myself.
Sorry in advance. We had free massages at work today and I was worried it wasn't going to be pleasant. I told the massuse to be gentle because of my condition. He proceeded to tell me that he's suffered for 34 years and he was able to "magically" get it to disappear. Get a load of this crap: He told me all I needed to do was drink distilled water everyday all day (and nothing else) with an organic fruit breakfast and three normal meals a day. That's all and good dude, if that works for you. But don't preach to me that my disease is because I'm dehydrated (which I could drink more, I know this) and that it's really not a disease at all. The massage was alright, even though I felt uncomfortable and it still hurt my lower back. Posted on 05/19/12, 02:42 pm |
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To Carmella-I had the same thing happen last year. I told a massage therapist that I had fibromyalgia, and I assumed she knew what it was. she was quite rough, and I did tell her a couple times. I was desperate for help for a leg injury, and it did help that, but she did something to my neck that i am still dealing with. We must be so careful with any type of alternative treatments, and make sure the person is totally familiar with fibromyalgia, as mine obviously was not. I hope you feel better soon, but I agree, I never get used to peoples negative comments, and they seem to hurt me more now than ever. Take care, Fibrohyg 
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Carmel..
I have never had a massage, but know that they can hurt you if they got to deep. As far as the water and the berries, I will put some rasberries in your beer, which is still waiting for you on the parrot deck:)
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Oh the cures...and the cured...ain't it great? I'm current ignoring my oldest friend because she has trotted out her once a year speech about how if I would just see her naturopath I would be cured like her.
Massage is awesome if you can find someone knowledgeable. I have a therapist who is third generation of massage therapists in her family and her mother (also a massage therapist) has fibromyalgia. Smile, nod, and say "thank you I never thought of that!" It makes them happy and gets you out of the office. Now if it was only so easy to avoid the ones who hang out in on-line support groups...
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My kids pay for my massages, I get them from a local therapist, have been going for years. I think it helps with circulation, and with my dry skin in places I can't reach. She gives us a discount and listens to me when I tell her to ease off. It's a pleasure for me to lie down in her massage room in her home, soft music playing, heater if I need it. No talk of cure or diet.
Get all the help you can if it doesn't hurt and if it doesn't promise a cure. I'd hate to give up this pleasure. Abby
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Thank goodness for my massage therapist. Have been going on a weekly basis since the fall of 1998. Since I can't take meds for my fibro, I can't imagine where I would be without my weekly treatment.
Oh, it hurts at times but that is mostly due to all of the knots & toxins I have built up in my body when I go in. It is very important that I take it easy & drink a lot of water when that happens. The most amazing thing about my therapist. She almost finds the worst places without me telling her. We also laugh & all so that aspect also helps me out. Again, each of us has to find what is the most helpful to us. I've had at least 6 doctors in various specialities tell me that either they could not help me or go home & treat myself. Remember it is called the "Practice of Medicine."
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Maybe I didn't give it a full try. I heard that once the massage is over, it is important to drink water afterwords. I'm also trying to consider acupuncture too, anyone try that?
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Hey Sweetie,
I've had too many flares start from massages. Where I couldn't function for weeks on end. I just won't do them anymore. LOL, even when I go in for PT, and she works on my back some, she ends up backing off because of the pain I'm in. As for acupuncture, I don't fully understand how it all works, but I'm a firm believer in it working. I've had too many treatments to prove the non believer (me) that it does work. As for the 'fibro advice'.....it's just that, advice. And just like with all advice in life, you can take it or leave it. Clearly you know better, so let it be the past and move on from it.
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I love getting massages. I have been going for 5 years @ 2x's a month. She started out very soft and relaxing. Now I get a therapeutic massage. It's a deep and precise massage. She knows my body so well. She can get into those troubled places and give me a lot of relief. You need to have somewhere that knows what they are doing. Massages have helped more than anything else.
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