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Advice:
can it be fatal
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My wife has been diagnosed recently and keeps talking about dying. I am so worried by this. Can Fibromyalgia be fatal. She has had symptoms for 20 years but no doc knew. In the end she went to a specialist in Norway and was diagnosed. Now she talks about the kids being alone if she dies. Please help. I dont know what to do. She broke her spine when she was 18 years old, but was "fixed". Could this be a reason for the Fibromyalgia?
Posted on 07/10/07, 11:42 am
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Advice:
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Reply #1 - 07/10/07  11:47am
" As far as I know, Fibro is not fatal. It can be triggered by an injury however. It sounds like she's quite depressed. I'm sure that's difficult for you. Has she spoken with her doctor or a psychologist about the depression?
Stay strong
Alisson "
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Reply #2 - 07/10/07  12:14pm
" I have never read that it is fatal. Painful and depressing.Hard to manage the changing symptoms and still keep functioning as normal. I have had it for 5 years and was only diagnosed 5 months ago.
It is not like ostioarthritis or reumatoid arthritis where there is deteriation with joints.
Hope this helps a bit.
hope she can get some meds to help her. "
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Reply #3 - 07/10/07  12:14pm
" She is on sertraline and a benzodiazepine, but they really dont seem to work. iT WAS EXPLAINED TO ME HOW FIBRO FEELS BY A SPECIALIST AND I WAS JUST SO SHOCKED THAT PEOPLE HAVE TO LIVE AND MANAGE THIS PAIN. She didnt get on with the Psychologist, whom I know and can understand why, but I just want to help her to lose this fear of sudden death. "
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Reply #4 - 07/10/07  12:36pm
" It was explained like this through a Net Specialist:

“With your thumb and all four fingers, reach across your chest and firmly squeeze the back top of your shoulder muscle near the base of your neck.
Squeeze modestly, but until it hurts…and then squeeze a bit more.
Maintain that pressure. Now, consider living with that sensation, not just in your shoulder, but throughout your entire body, day after day, year after year. If you are able to do that, you will have some understanding of the quality of life of an individual who must endure the symptoms of fibromyalgia."

Is this an adequate description? I tried it and my shoulder still hurt an hour later.

I never knew she was in this kind of pain and wish I had as perhaps I could have helped her in a way that I didnt know how to. "
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Reply #5 - 07/10/07  12:37pm
" God bless you for trying to help your wife! I too used to talk alot about my death, wanted to give away certain things to each child, consulted a funeral director for pre-planning, wrote notes to my family to be read after my death, etc. Went to a psychiatrist but he didn't help! I was taking Cymbalta and Elavil. I do not know if those meds contributed to my mental state--BUT I quit taking both of them because of other side effects. I NOW take Prozac and clonazepam. My mental state is much better, but my pain level is about the same.
Please let her know about this site and that she is NOT ALONE! Perhaps her doctor could evaluate her meds and try different ones until she feels better mentally. You've already helped her by contacting this site for support. There is much she can learn here about reducing her pain and feeling better!
May God bless your family! "
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Reply #6 - 07/10/07  12:43pm
" I pray for her relief and strength always. I believe God does and will always give her strength. We are separated at present because of my own problems and lack of understanding, until now, of her pain. I can only ask forgiveness and offer my help to her now. "
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Reply #7 - 07/10/07  2:03pm
" There are so many facets to fibro - depression, chronic pain that can put you in bed for days, fatigue (imagine the worst flu you've ever had and times it by 10), reactions to various meds, the inabilty to do the things you once did or want to do now and the list goes on. To generally find out about fibro with basic clear language I recommend "Fibromyalgia for Dummies". My husband read it and continues to refer to it when I talk about fibro issues. When the depression is really bad and out of control sometimes you feel like you want to die but I've never heard of anyone dying from fibro. Hope this helps... "
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Reply #8 - 07/10/07  2:54pm
" Fibromyalgia is not fatal nor is it progressive , Depression on the other hand is a serious illness, if your wife is depressed please please please help her find a therapist she is comfortable with and encourage her to continue therapy, her primary doc or psychiatrist can try to work with her meds to find one that helps, Is her pain being properly managed? Does she use this site for support ? daily Strength has got me through some tough times, encourage your wife to reach out to others with the same diagnosis, God Bless you for being so supportive of her and trying to help her, please let us know how you are both doing...love and hugs "
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Reply #9 - 07/10/07  5:00pm
" fibro is not fatal however some can have pain soooo bad that they feel like they are, however most of us no how to control things so it doesn't get to that point.
trish "
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Reply #10 - 07/10/07  5:01pm
" I wish I had known as much as I Know now. It is probably too late for our relationship as i was one of those men that believed in "pull youself togetheer and get on with it"Since sept 2005. in have changed, i led a lifestyle that led me into a selfish state of alcoholism. which i battle again but i will always love her and help her. i help myself, but she took me from the despair of suicide to a "normal life", we are only together through God and Jesus, who is with us all, whether one likes it or not, always. Life is a gift, not a right, remember to give is always harder than to take. If anyone out there thinks that my views are GodCult, then think agian. was an atheiest until I saw my angel that had and still protects me in a way that not many will see. My faith anhd hope keeps others alive. Yours can do too. please dont give up. I have a didease that will kil me but I caused it myself by smoking LOTS,LOTS, Of cigarettes. Can I ask each one of you that readsthis to give a homeless person that you see within the next week a couple of dollars(in uk a £1) He/She may buy a beer oor a whatever, so what. JUST DO IT. "

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