What is Essential Tremor

Essential Tremor (ET) is a neurological disorder characterized by shaking of hands (and sometimes other parts of the body including the head), evoked by intentional movements. The ...

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My son
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My 12 year old son has Benign Essential Tremor Syndrome and I don't know what to do to help him or to keep myself from getting frustrated. I know that him getting nervous or feeling stressed only makes the shaking worse, but I don't know how to "fix" the situation.

I feel horrible when I discipline him because I can see him begin to shake....but I have to parent him. Any suggestions?
Posted on 09/25/09, 11:09 am
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Reply #1 - 09/26/09  1:08pm
" I know what your son is going through. I was born with ET. I have never known a time without it. Get your son to a neurologist. Many things are mistaken as ET. A sprcialist will be able to tell for certain. I know, I have two. They will also tell you how to treat it. There is no cure. (Except for perhaps deep brain stimuation, but that does not always work.)
I had ET for the first 50 years of my life, in no way did I consider ET a disability. Heck, I was in the navy for 6 years (Seabees).
I believe your son will find when he reaches full growth, he find a way of dealing with this. Right now, it must seem hopeless, but on top of ET, he also has to deal with the natural changes that are happening now. I remember.
Drugs seem tour best bet. As I said there is no cure, but you can lessen the tremers with drugs. There are several different kinds. I take inderol.
After 50, I found that I was slurring my words(ET can affect toungue, larnyx, and palate) Also, I had to struggle to write my name. I thought it was brain damage. I went to a neurologist and he told me it was essential temors (I did not know). He put me on inderol and and my ET problems vanished. there is still a small shake but I can write and speak now.
So, don't despair, You can have a normal life with ET. "
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Reply #2 - 09/28/09  5:50pm
" Personally, when I was first diagnosed i couldn't go on any meds or anything and i wasnt treated any differently. That way i got used to accepting my tremors as normal, i guess it was tough love. As they got worse provisions were made for me, such as a laptop for college etc, but apart from that i wasn't treated any differently, and that way I could just accept my tremors and get used to them being a normal part of me.. But everyone's different, so he may not benefit from this approach. Even so, hope it helps. "
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Reply #3 - 10/02/09  10:08am
" I agree that he shouldn't be treated any differently because of ET. it is not a disability, So parent away, he is always going to shake at certain times but it is not because you are disciplining him. "

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