Essential Tremor Support Group

As far as I know, only dbs is the only cure or treatment, that is deep brain stimulation. Hope you get better.

THank you very much

I'm with you I am pretty annoyed with my hand tremor as well, and now my voice is being effected. My right leg shakes on occasion--generally when I'm driving--but what gets me is it says in the literature on ET's that is does not effect both sides of the body--mine is left hand and right leg, now vocal cords--so that makes left, right and middle.--URRRRRRRRRRRR

Another treatment is Antiseizure meds, or botox injections--I would not rather do either one of them due to the side effects. My neuro tried on med and it effected my heart so I had to stop it immediately. I dont do well with meds so I look at anything alternative to try.
How many of you get cramps in the body part effected? I have just started getting severe cramps in my left hand. It goes away after massaging the hand for a bit--but boy what an inconvenience since I am left handed.

MY voice has been getting affected too. especially when im upset. lately my balance has been worsening and since im a dancer this is not good. i really dont know what to do. Its a hard pill to swallow i sill cant accept it

have you considered the medical options of having surgery since you are a dancer and there is no cure or research to back up the reason for it? Does drinking alochol help? I am tempted to try that myself--have a nip or two a day to see what the results might be.--LOL

Even though I was born with ET, I never had any trouble speaking. That all changed when I hit 50. I was slurring my words. It would suddenly start without warning.. Well it turns out that ET can affect your tongue, palate and/or larnyx.I take inderal for ET and it does not happen anymore.

Ahhhhhhhhhh Celt--you may have solved my slurring and bumping issues with my speech. I have spoken to my sons SP and she believes the voice changes is due to the ET but she has never heard of it effecting articulation and fluency--please tell me how you came about the connection. I want to let her know.

Inderal is a propanol(sp) and I can not take anything like that--it effected my heart badly with just 1 mg. Heck I can't even do Benadryl without my heart stopping. Anyone know if Triple Complex is any good--I have used some native remedies in the past and it's been hit and miss with them. None of the ADHD supplements helped my son, we use other brands for that.

Hi Sowie
I found this info on an internet website. I believe it was WEBMD or a similar site. It was some time ago
Celt

honestly surgery scares me. I am on inderal but dont feel like it really helps much. I find it that wine helps lol. a bottle or 2 make everything better