Epilepsy & Seizures Support Group

Hi I am new to this. I have quite a few other diseases/conditions & now it looks like I may have seizures/epilepsy. For about the last 12 months I have been having "blank outs" where I just stop what I am doing & stare vacantly. I get a jolt/shake feeling through my body & then confused about where I am or what I am doing. I have told Dr's & they have not seemed concerned & don't investigate it.
I also do things like I just typed up this with details, didn't click submit & then must have clicked x to close without saving. Hubby said I looked like I had fallen asleep.
Anyway I was ignoring these blank outs as Dr's didn't seem concerned & too much else going on health wise ESP with ms.

Wednesday I was at work & had the worst one ever. I had felt a bit out of it before lunch but after I ate felt fine. I remember about 2pm thinking I am going to take a break soon & get a drink etc. Next thing was a colleague came up to me & started talking, I could hear the voice, see she was talking but not understand anything. I suddenly jerked a lot & asked what she wanted. She said I had been staring at computer then her. She takes over from me when I finish as I am part time & she works the days I don't so we usually tell each other what we are up to workload, I looked at the work on my desk & some was face up, some face down & out of order, on the screen some had been completed & some hadn't. I was totally confused, didn't know what I had done & hadn't. I almost cried. It was 3pm which is my finish time & I don't know where that time went or what I did, It was a very scary feeling.
When I went to stand up I felt like I was out of my body or out of control of it. I struggled to walk as my legs would not move when I told them to. I thought that was ms but I still couldn't put two thoughts together or make sense when I spoke. That night I could not stay awake & kept dozing off all the time. I was totally exhausted.

The next day I got up & it took me forever to get organised to go to physio, I got there & was ok, it is a group for people with ms. We have coffee after in the coffee shop & I was talking to a couple of them about the previous day & they said it sounds like epilepsy. My foot/leg/arm/hands also jerk, numb etc which I thought was ms. One of them has epilepsy & said it is the same as what happens to her. Later as I was chatting to one of the others I (apparently stared blank, ) at her, then I shook myself & went to continue our conversation form a few minutes before. She stopped me & told me what had happened, exchanged a look with the girl opposite me who then said I had just had another seizure & told me what I had done.
This is getting very scary as I don't know its happening & get very confused & it is happening more often. I spoke to Dr who was not concerned. I am seeing my neurologist on 22nd so will ask him about them.

I know you aren't Dr's but does this sound like epilepsy to any of you & what should I do when I go to the neurologist, like ask etc.

Any & all help or advice would be appreciated.
Thanks, Sue
Posted on 10/10/09, 07:10 am