What is Endometriosis
Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...
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happy to have endo
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hi ladies
before i start i will give you all a little bit of my endo story. i started my periods at the age of 10 and they have always been heavy and painful, at 15 i got on bc pills to "help" with the pain but the estrogen caused blood clots throughout my body. at 17 i had my first visit to my ob/gyn who found a small cyst but wanted to perform a lap to check whats going on. he gave me a list of 13 things that could cause pelvic pain and on the list was endo. i had my lap in dec 08 and he found endo. i was actually happy and excited to know that i have endo and i wanted it, mainly because endo was the only thing i did my research on and the other things on the list were horrible. anyways has anyone felt happy to know they finally have a diagnoses even though its endo? for me i was happy because i hated kids and i knew it can cause infertility and that my pain wasnt just "a bad case of pms" how did you ladies feel after finding out you have endo? Posted on 11/06/09, 10:11 pm |
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I've had endo for many years and as the years go by the pain gets more intense. I have had eight major lower abdominal surgies. The last one I had the surgeon thought I had a hernia but after surgery waking up in unbelievable pain I had never felt, I knew something was wrong. My lower left inner and outter oblique muscle was removed because of a nodule of endo that was found. I would cry and scream just to sit up. To this day I have a lot of left side pain since part of the muscle was removed deep down, there is so many things I am limited to doing. A month ago I went through two more procedures and found endo is in my intestines now. There's nothing they can do for me at this point. I am not physcially strong enough to go through another surgery so it's a waiting game for me. I feel I have had good doctors but am scheduled to see an endo specialist in December. Eventually I will have part of my colon and intestines removed. The pathology report also showed malignant endometerosis. I have been doing a lot of research on that as well. Sometimes I really just want to give up. I have found myself saying I am ready to die and I'm okay with it. I don't want that but I am so sick of the pain. Just a constant battle. 
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jamihaz, i know what you mean when you say you are ready to die and are ok with it. every day is a struggle. especially when you can't explain to others and you cover it up with smiles and laughs...which take MORE energy. I can only say you are not alone.
When i get really down i get on here and find out not only am i not alone, but i am not the worse case scenario....we all have so many things that make our situation worst then the next (whether be those in our lives, or where endo is hanging out in us, or new remedies that we spend $$ on that doesn't work). You are never alone. i will be praying for you
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