What is Endometriosis
Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...
Join Now
|
happy to have endo
|
Watch this |
| View More Posts Ignore |
hi ladies
before i start i will give you all a little bit of my endo story. i started my periods at the age of 10 and they have always been heavy and painful, at 15 i got on bc pills to "help" with the pain but the estrogen caused blood clots throughout my body. at 17 i had my first visit to my ob/gyn who found a small cyst but wanted to perform a lap to check whats going on. he gave me a list of 13 things that could cause pelvic pain and on the list was endo. i had my lap in dec 08 and he found endo. i was actually happy and excited to know that i have endo and i wanted it, mainly because endo was the only thing i did my research on and the other things on the list were horrible. anyways has anyone felt happy to know they finally have a diagnoses even though its endo? for me i was happy because i hated kids and i knew it can cause infertility and that my pain wasnt just "a bad case of pms" how did you ladies feel after finding out you have endo? Posted on 11/06/09, 10:11 pm |
| 12 Replies | Most Recent | Add Your Reply |
| View More Posts Ignore |
I knew i had endo before my lap was done because it was the only thing that caused pain when using the bathroom. I wouldnt say i was happy to have endo. I have now had 2 surgeries in the past 2 years and i know alot more will follow. Endo can be dangerous though rare. It can grow on your brain and even in your lungs. Mine loves to grow on my bowels and bladder and pretty much everything in that area. Endo can grow through your intestines so i know i will probably lose some of mine one day. So i suppose no im not happy to have endo. You are still in the beginning stages and it could get worse. Mine started when i was about 17. By 21 i knew i had endo because of my symptoms. I am now 28 and it has grown alot since my surgery on june 23. Good luck with everything and if you have any questions just message me anytime! 
|
|
|
|
||
| View More Posts Ignore |
to the girl before me (hopelessly waiting) how do you know its growing on your bowels and bladder? What are the symptoms of that?
|
|
|
|
||
| View More Posts Ignore |
I get a really sharp pain when using the bathroom but only when im on my period. And it has been removed from my bowel and bladder in both surgeries but it keeps growing back. Mostly just a bunch of adhesions that connect my bowel to my side and it doesnt hang freely anymore. If you have sharp pains when using the bathroom then it could be on your bowel or bladder.
|
|
|
|
||
| View More Posts Ignore |
I have a chronic back pain issue from a doctor hitting a nerve with an injection. I'll have it forever. But when I do scans and what not, they hardly see anything. For once in my life, I am so glad that they found something that was causing my pain, I dont feel crazy!
|
|
|
|
||
| View More Posts Ignore |
i am not happy to have endo. I was diagnosed at 18 and it was detrimental to me. i've always wanted kids, and this will hinder that. I am 28 now and have had 6 surgeries, 4 rounds of lupron, and a LUNA done in one of my surgeries. I hurt regardless of what day of the month it is... i have stage 4... it's on my bowels, bladder, appendix, uterus, tubes, ovaries. As for knowing it is on them, they find out in the laporoscopy... when i was first diagnosed, it was just on my uterus, but 9 years later and it's everywhere. also, you have pain when you pee or poo. for me it hurts so bad sometimes i'm in tears. i just had my last lap in feb 09 and within a month i was back in pain.
|
|
|
|
||
| View More Posts Ignore |
I guess you mean 'happy to have a diagnosis', since I find it hard to believe ANYONE can be happy to have endo.
There is nothing about this disease I have appreciated. Yes, it has made me stronger, helped me see who my friends are and taught me to appreciate life, but I think I could have learned all of that without 20 years of chronic pain. I think it is really relieving for all of us to be finally diagnoses and 'know the devil' so to speak though.
|
|
|
|
||
| View More Posts Ignore |
to sxulcmnky:sometimes i go get pain when i pee and have a bm but very very rarely. i only have adhesions on my bowels and colon but so far endo is only behind the uterus.
to utah: i guess im the only rare breed that dosent mind having endo! yes my pain has been bad but i dont mind it. i think because im used to it and thats all i know. anyways ladies thats for your comments
|
|
|
|
||
| View More Posts Ignore |
I was relieved when I found out, honestly. I wasn't happy... no, but there was that moment I felt I could breathe because at least now I know that there really IS something wrong with me... that what I've been going through for years and years is NOT normal and that there is a reason for all of the pain.
I think if I'd come out of the surgery and had her say that I was fine I would have cried. I was really growing tired of doctors saying they couldn't find anything wrong... anything to explain the pain.
|
|
|
|
||
| View More Posts Ignore |
kentucky i agree. i think i would have cried if they didnt find anything either. i hate that all these years people thought my symptoms were just a bad case of pms and im sure you ladies were told many things before you got a diagnose.
|
|
|
|
||
| View More Posts Ignore |
sabby you are definitely a rare breed! I am with SXULCMNKY. When I was first diagnosed 15 years ago, I lost an ovary, but I was good to go after surgery. Afterwards, I rebounded quickly.But in the past 5 years i have had 5 surgeries...and just 3 of those surgeries alone were in August of THIS year. The disease just gets more complicated. Plus after years of fighting and trying to let employers know why you are calling in sick, or telling friends you just can't go out to happy hour AGAIN...it is not fun.
First being diagnosed I could take Ibuprofin and had never heard of "adhesions" and loved to work out. 15 years of this disease, and pain specialists, physical therapists, accupuncture, people thinking you are faking, surgeon after surgeon, medicines, diets for endo, herbal remedies, no working out in 7 months, and the fact that endo doesn't get the acknowledgement it should...i am fed up with this disease!
|
|
|
|
||
| First | Previous | Page: 1 2 | Next | Most Recent | Add Your Reply |
