What is Endometriosis
Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...
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rectal/tail bone pain getting worse
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first of all, thank you who ever takes the time to read this... xx i have tried to describe 'it' to the best of my ability...
im still not diagnosed, and i am doubting i have endo. im on a waiting list that can be as soon as 3 weeks untill my laproscopy ad hysterscopy. i want to push for a colonoscopy before a lap. ( this is not 'IBS' ) i have very bad lower back pain/ache. it does get worse before period. but its currently after my cycle and its so bad... it extends all the way down my legs.. so badly it feels as though my legs will go in to an 'epeleptic' fit. my tail bone and rectum pain also extend to my buttox. also my groin area. i get the feeling of period like cramping inside my lower back area which would be the cul de sac/pouch of douglas. i imagine endo to be more localized... but lately its been radiating to nearly mid back ... ( not spine, but furher inside ) i can feel it is either in my 'bowel canal' or just outside it. its like a preassure. one minute its a period feeling, the next it totally irritates my bowel. i get a hot flush inside and also cold chills, which extend down my legs... i have heard of adhesions at the tail bone rectum area.. maybe a posibility. im just at a loss, and i am so SO scared nothing will be found in my lap. there is something wrong. the 'preassure' it creates inside that area literally compresses my body and to breathe makes me sweat, i have started staying more confined to bedrest as i just can not deal with walking around and 'irritating' what ever it may be... the toll it takes extends to my head and everything is lightheaded. last night i got very dizzy ( i do not have anxiety ) and last night i feel i have moved into another stage of 'its' severity with the tail bone pain 'vamping' up... it was deafning pain. also causes heavy fatigue and breathlesness. from the 'preassure'/'irritation' does this sound familiar ? anything from anyone.... xx Posted on 07/03/09, 10:07 am |
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also get the uncontrollable twitching at tailbone/buttox area. also all over body 
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i get this kinda feeling, i get pain in the pelvic area period like pains, my lower back and tailbone. I get a pressure feeling on my vagina and my bum, it makes me feel like i need to go to the toilet but i dont, i get a irraitated itchy feeling at my tailbone and the week before my perid when my bowels mess up it feels like blood is running through my tailbone. I get radiating pain in my thighs and buttocks..good luck for the lap when you do get it. Xxx
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yeah i get itchy at lowerback on my skin...
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Severe rectal and tailbone pain is one of the symptoms I have had for years. As the adhesions worsened (I have them in my cul de sac and all around that area) the pain in my coccyx (this is actually what your tailbone is called) got worse. It became sciatica (a pain that shoots down my right leg) that was so bad I couldn't move for months on end.
I think you need the lap to see where your endo is, but I would bet you have adhesions or cul de sac endo of some sort. As for the pain radiating down legs, across back etc. my surgeon said that is 100% normal with endo of that area. It is called 'referred pain' and when abdominal pain gets bad enough, it finds other areas to go basically and infalmes everything. It does not mean you have leg problems, pressure in any area or neurological problems, although I know it feels like that. I think you can assume you have some pelvic problem that is causing general pain all over and there is no point in sitting wondering "where is it? what organ is it affecting?" until you have a lap. When you do, you might be surprised to find the pain is not in the areas the endo is (as my surgeon said, pelvic pain is tricky and often doesn't correspond to where the adhesions are). Push for a lap, try to stay calm and know that once you get an answer you will do better at treating things and not worry so much.
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P.S. Twitching is often a sign of being dehydrated as well...drink lots of water and rest when it is bad!
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thanks for replying,
im not worried. i am trying to do research as no doctors use their own heads. oh yes i know the pain at my legs and else where is from the actual local point ( referred pain ) i can actually feel it streaming from there. many docs wouldnt listen and did head scans to check for tumours when i knew they were wasting their time.. they have a hard time understanding how something so severe can cause it to go all over our bodies. im definiitely inflamed, and my nerves are playing up ( the neurological ones ) i mean hey, our bodies are made of nerves, tendans, muscles... its all conected. the twitchiing is not from dehydration or lack kof magnesium.. its from the severity of whats happening... muscle spasms etc thankyou for your reply.. xx now ill have to wait for y lap to come around. i want to push for a clonoscopy before it comes around
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why is it you are doubting having endo?
I think the only thing i havent done to do with my stomach is a colonscopy..i heard its a horrible procedure, i got a sigi..soemthing or other i cant remember the name where they insert a tube up your bottom and pump air through to see if you have inflamation of the bowel..that was so horrible! Im happy i shouldnt have to do any of that again.
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sigmoidoscopy.
yes its horrible.. a colonoscopy. but less invasive then a lap, and in reality my bowel shuld be checked first over a lap. cant explain why i doubt its end. just feeling what i feel.. xx
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I didn't find the colonoscopy to be horrible at all! They gave me a drug that doesn't put you out...just induces an amnesia effect so you don't remember anything. The worst part was the prep the night before...which you also have to do for a Lap. The colonoscopy will only show the inside of the colon and intestines....and the endo would more than likely be on the outside, only detectable from a Lap.
I think your symptoms very much sound like Endo. And I find the longer I have this (I have had it for 15 yrs now...though only officially diagnosed by lap in March 07) the more weird my symptoms get. I feel like my body, at times, is trying to react to so much pain that it's kicked itself in to overdrive and possiblly reacting to pain that is not even there!! I totally have tailbone/lower back pain...that has long been MY signature/classic endo pain...and I don't have endo where you mentioned. I have it on my ureters and I have a huge mass of endo scar tissue behind my uterus. I do also believe that endo has penetrated one of my ovaries. (It can slip between layers of skin...making it impossible to detect in the walls of your abdomen...and also ovaries. Only way to tell that is to have it removed and disected...or if the endo grows bigger than the ovary and it's caught on ultrasound or ruptures. )
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It does seem like an at least 75% chance you have endo or adhesions the more you explain your symptoms...
I had a colonoscopy last year and it was HORRIBLY painful. But I had a jerk of a doctor do it and he rushed, shoving the camera through quickly, then pronounced there was 'nothing wrong' and when I went for follow up said "You have IBS", gave me meds and sent me home. I knew he was wrong. When I had surgery 6 months later the first thing my surgeon said was "Your gastro dr was not very smart, endo of the bowel is not viewable on a colonoscopy unless it has completely invaded and gone through the bowel (which is rare and shows symptoms to indicate it by then)". He actually laughed at that doctor and said "Why would he diagnose you with IBS from a colonoscopy? It cannot show IBS, as that is just a term for bowel problems that are unexplained:. He did the surgery and confirmed my bowel was stuck to the side of my uterus.....which was : 1) why I had all the bowel symptoms, rectal pain etc. and 2) why the colonoscopy was horribly painful ....that dr was essentially RIPPING my bowel off my uterus when he shoved it through. I was literally yelling for more drugs and he said "It will be over soon". Jerk. Colonoscopies are useful to rule out chrohn's disease, celiac disease, bowel disorders etc., I feel for you, since until I saw that brilliant surgeon (a Harvard grad), I thought I was insane and actually cried after the apts. with the gastro dr. Keep searching and I hope you get answers soon.
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