Endometriosis Support Group

My doctor has been wanting me to do the lupron for months now. I have had 2 laproscopic surgeries and I am still hurting but not my ovaries anymore, I have pain in my bladder area. Not even sure if it is endo or scar tissue. I made my final decision today NOT to do the lupron. Like you, I have read many horror stories. I would rather stick with the pain then change my hormones and have all the horrible side effects that go with it. That is just my thought on the whole thing. Good luck in whatever you decide to do.

there are many other, better avenues to explore than lupron. have a look at www.endometriosis.org - they outline the pros and cons of different treatments. have you seen a fertility specialist? also, its important to make sure *both* of you are fertile.

NO NO NO WAY!!! AFter 2 surgeries doctors told me Lupron was my only hope. I took it 3 months, terrible side effects, still feeling them 10 months later. I'm out of work b/c of it now. ANd it didnt even work. My cysts and my endo was back within a month of my last shot!

Litsten I am going to be completley honest with you. This is my second bout with lupron....The first time I did it for 3 months the side effect were horrible hot flashes my hair was fallingg out I was mean. My hot flashes never went away after I went off of it. Well my endo came back and I decided to try the lupron again because my dr told me it was that or a hysterectomy and I do not want a hysterectomy at 27 well I got the shot last wednesday and on thursday I woke up with such bad pain that I was crying and I could not stand up by myself in the shower by myself. and I am so mean to everyone in my family I keep on aplogizing bottom line I line I would say no don't do it message me if you want more info

oh jlara i am so sad to hear you have been beaten about again by lupron. that drug is a menace! hopefully you can get some adequate pain relief to get you through until the damn stuff wears off. why do these doctors not consider mirena or implanon first? i do not understand.

I've definitely heard all the horror stories as well. But after I had a lapratomy in April I went on it for 3 months before my 1st IVF cycle. It was the best thing I'd ever done and I can see that I'm probably one of the few to feel that way. I hadn't read about all the side effects and I just went w/ what my RE recommended. I had hot flashes and headaches, but in comparison to how I was feeling w/ the endo pain, it was nothing for me. Everyones body reacts differently and I thought it was the best thing I'd ever done. I started the IVF cycle w/ a clean slate. Good Luck!

its true that some women don't have lasting damage, which is great, but one disadvantage with lupron is that you cant reverse it. ie, if youre unlucky enough to have bad side effects with mirena or implanon, you can have them removed and the side effects usualy goes away.

Wow this topic is a much debated one that's for sure. It’s interesting and scary how many different stories you get. Personally for me I am in a similar boat with LorrieG, just went through 3 months on and just starting my 3rd IVF cycle. It was my second time on Lupron the first was for 5 months, side effects this time were lighter, don’t know weather that had to do with everything else I’d been through that the hot flashes, headaches and sensitivity to lifetime tv I’ve simply gotten used to ;) or that this time I combined it with Chinese herbs. I think it’s a combo. But I do know that it has worked for me to minimize my pain, and shrink the adhesions so their “dealable”. It’s a treatment combination that works for me, I hope you find your combination weather it be in part with Lupron or not, none of us deserve to have to live with the pain and general upheaval this damn endo brings.

Lupron is a miracle, I've been pain free for the first time in years, I'd forgotten what this felt like. My side effects have been very bearable ... It doesnt work for everyone, but I think it's worth a try. Goodluck whatever you decide!

flwr that is awesome! yay! the same thing can be said of mirena - some people say its really bad, i think its wonderful - i guess this shows that we sould go into the treatments with our eyes open, and also make sure the doctor tells us what signs to look out for and report back if they develop.

what i really dont like is when a doctor pressures a woman into taking something when she really doesnt want to. the doctor should take more time to explain why they think it is a good treatment and respect that the decision is the woman's! we do have enough intelligence to find out what else is available and to raise genuine concerns with our doctors.