Endometriosis Support Group

Hi!

I was just reading this discussion & felt I had to respond. Like a few people have replied, adenomyosis can only technically be diagnosed after a hysterectomy (with a biopsy). Doctors can think & assume that you may have it, but as far as I know, there is only 1 sure way to tell.

My doctor also thought I might have adeno as well as endo. I was told that a hysterectomy is not a definite cure for endo- but may be for adeno- that part I do not know.
For a hysterectomy to help with the pain of endo, it all depends on where your endo is located & the size. If someone had endo in places other than the outside of the uterus, those places will not be taken out with the hysterectomy. There are also so many other things that determine this, like your hormone levels, your chemical makeup, diet etc... It is so different for every one of us that noone can say that something is for sure.

For women with endo, it's very common to get 2nd, 3rd and even 4th opinions, since there is quite a difference in the opinions & knowledge of this disease. Sometimes one doc can diagnose you, but doesn't understand the follow through & care. Maybe one can help you for awhile until you reach a certain point in your care, The most important thing is that you feel comfortable with your doctor and that they are not pressuring you into surgery or children. Their job is to explain things to you, give you the pros & cons of various options, then you make a choice together with your doctor on how to proceed. I got very lucky with my doctor, but did have to go through a few of them to find him. So just keep in mind that there are good ones out there.

Witchiepo gave the name of a great website. Another one that I know of is www.endometriosis.org .

Good luck to you, and keep us updated!

hi Low

just to let u know i have just been diagnosed with ando and endo.

i only found out fri, well i havent had hysterectomy!!!!

I had lap and hisc. I see my consultant wed so will let u know more about treatment xxx

I also have been diagnosed with Andomyosis. I had endometrial ablation (burning out of the liner of the uterus) done about 18 months ago and it failed due to the fact that I have andomyosis. I go in for a hysterectomy next week, its the only cure for andomyosis.
I have never heard of or read in anything that I've researched that it is usually found in women after/during menopause. They have no idea exactly what causes it, except maybe trauma to the uterus as in not carrying a pregnancy to full term or surgeries. However my doctor told me that it usually only occurs in women who have had children, but that they have yet to find a cause for sure. I do know that it is progressive and very painful. I was given the option of being on pain pills the rest of my life or hysterectomy, so naturally I chose the surgery. I am 34. The pain from this disease only gets worse and I am living proof. There doesn't seem to be alot of info on the internet about it, probably because they don't know what causes it, only how to fix it.
Good Luck! :)