Hi, I know about the pain i was your age when i learnt i had endo at your age even though i am 27yrs old he is not going to give me either and i live in the caribbean so it seems to be a medical believe when it comes to doctors.Rightnow i have run out of treatment so my doc ask me to consider starting a family and am going to consider it i believe when i study the pain i have gone through it just can't get anymore worse. All i can say to you i know you are to young for the doc to even consider the HYSTERECTOMY you need some relieve for the time being, so try to look at other options in the mean while. I wish you all the best keep the fight. janea

Hi dear... i know exactly what you are going through... honestly...my pain is the same way...and yes i too am tired of being lazy...(i feel like a bad wife sometimes cuz i can't keep up my half)
HOWEVER i also know why your doctor is refusing...there are actually 2 reasons...I too asked my Dr. for a hysto... because i was sick of the pain and just wanted to be my old self again (before the endo hit). And just like yours my Dr. said no. I was just as frustrated as you- and i asked him...and his reasoning was this #1, he felt that at my age that i couldn't be 100% sure that i didn't want a family & #2 if he did the surgery and then i decided that we did want a family i could actually sue him for doing it even though i wanted it. (i know that seems wrong like he is only looking out for himself but read on) I also didnt want kids, felt that it was enough - just me and my hubby and our dogs and cats... BUT I changed my mind... i know it seems like you are 100% sure, i felt so too, but then the want to be a family and have children hit...and i thought back to asking for a hysto and i am thankful that he didn't do it. You can always seek another Dr. who will do it...but please please try to find another option.. i know it seems like you have exhausted all of them...but look to another Dr to see if they have a different insight- i would not want to see you get this and then a few years down the road you and your hubby decide that you 2 do indeed want to have kids. Hugs to you and i am here if you need to talk....

I know how you feel dear. I have been asking for the hysterectomy since I was 24. I have one child and was told after I had him to not attempt to have another one! That it would either kill me, the baby or both of us and yet year after year the doctors keep tellig me they do not want o give me the surgery because I only have one child and to keep reconsidering. I have known all of my life that I only want one child, my husband as well knowing that it is to dangerous for us to consider a second, but the doctors tell me other wise. two years ago I was asked to stay on the depo shots until I turn 30 and the doctors will then consider giving me the surgery. I will be 30 later this year and I still am expecting the same answer. I wish I had some better advise, but plain and simply from my experience the doctors will just tell you that you are too young. My mother go her hyst when she was 21 but her case was life threatening.
I wish you the best of luck. I am from arizona and the best doctors I ever dealt with were at the U of A hospital..

The only reason the doctor has not given you a Hysterectomy is the cost of the surgery. If you have already had 4 and requested this , then he is padding his pocket. I know that different types of inferility surgeries cost from between 10,000 to 40,000 dollars . Trust me my insurance will not pay for any of them. If you are not happy change doctors. State what you are comming in for . My aunt had a hysterectomy when she was your age. She says its the best thing she's ever done. I know that each time I see a doctor , the first thing he ask me is how many children I have. I've talked about it with my doctor but the bad issue with me is bone problems latter on in life . My mother has issues with that , she is only 55 and has bones of a 85 year old women.

Well, the thing is at least partly this: it's not necessarily a "cure." I know someone who had one at age 34, which is still pretty young, and she still has problems.

So besides the fertility factor, you have to consider the question of whether it will help as much as you hope. Surgery is a big deal. I know you're terribly frustrated but at the same time, you don't want to run into a different type of problem that causes you as much or more grief.

Another thing to consider: some women do not do well with hysterectomies. You would likely require hormone replacement therapy...and if the endo is elsewhere in your body, I wonder if you would still run into problems.

I am so sorry you are dealing with this, and I know so many of us on the board understand your frustration. I tried pulling out the stops and did all the alternative things at the same time...and they do seem to help if done all at once.

Also, I felt better during pregnancy. Not that that is a cure, but I can honestly say that the 4-7 months were good ones. Some women say it eases the endo for some time. I wish I'd been one of them.

Never be afraid to shop around for a doctor you are comfortable with. It is just like any business therefore you can take your business elsewhere. Insurance companies will not okay any hysterectomy unless it is for a serious illness. What ever! this is serious enough. Insurance companies and doctors won't even consider a hysterectomy around 35 depending on the company and doctor.Yeah youth does have a play into the doctor's decisions. Yet if you have already thoughtfully decided not to have children than age should not matter. The individual person is the best gauge for deeply personal choices not a doctor.

Also, I would urge you to read about hysterectomies, bad stories as well as good ones. If it's for endo, you'd likely have your ovaries removed as well, and it is major surgery.

I'm not saying not to do it, but I am saying that when I started to read about it, I understand why my doctor is hesitant--and I am 39.

I am in the same boat. I have had 2 surgeries, not as many as you. But I am also begging my doctor for a hysterectomy. I already have my kids and I am almost 40 and they will not give me one either. I also am at the end of my rope. I would just keep looking. If you find a doctor stay away from hormone replacement.

Thank you for all your advice. I hope that you all read my page.. it kinda tells you a little more about me and what my stituation is. I know everyone keeps saying that YOUR TOO YOUNG, YOU MIGHT CANGE YOUR MIND, I know I have gotten it from everyone including my mother in law who only wants me around to have kids! BUT it's not like that. I have spent my whole life raising myself and I may be 21 but I feel just as old as my mother does(38). And I am not kidding either. All my life I have NEVER I MEAN NEVER wanted kids. and the same with my husband... we have plenty of neices and nephews to go around. Anyways, I know that people and doctors which I have only spoken to 2 dr.'
s through this whole thing...keep saying OH YOU MIGHT CHANGE YOUR MIND, NO NO NO I KNOW for a fact that I DO NOT want to have kids and I DO NOT want to start a family because the stupid doctor tells me it's a good idea. I hate hearing that. All I know is that if it costs me a million to 2 million dollars to have someone do it, I will me more than willing to pay that much. I feel that my quality of life is more important than raising a kid. I don't feel like it is fair to the kid...because I know that I will still have the pain after I have him or her, and I will feel terrible because of not being able to care for them. I don't think that it is fair to the child to not have there mother around because they are in pain all the time specially if I can help not make that happen in the first place. I love kids and I have a lot of respect for people who have kids, and I specially feel for moms that have to life with this illness. And I know that my husband and I would be great parents but, we like the freedom and we like to have the life where we can pick up everthing and go to Hawaii and surf for 2 yrs without worrying about anything. That's why We don't want kids. We love them but they are not for us. And as far as this pain I can't take it anymore and I HAVE to find a doctor that will do this procedure for me. I am going to a Chronic Pelvic Pain Clinic at the U Of A, but I had a recomendation for another Doctor who is very open minded about doing hysterectomies on young women and he does volenteer work for people down in Mexico who can afford treatment...so I have a feeling that he will be more open to my situation and more willing to listen. So just wish me luck and I hope that this gives you a better idea about who I am and what I am about. I sincerly from the bottom of my heart thank you for all your advice and I will be praying for all of you guys to get better and find relief from this pain. You are in my prayers


GodWILLHealMe

Honey, I feel your pain. I am 28 yrs old with a 12 year old step-son, 11 year old son, and 5 1/2 year old daughter. My husband is 34 years old and had a vasectomy 11 years ago. I have fought for 2 years to get my insurance company to approve a laproscopy. I have been told my next surgery will have to be a hysterectomy because there are "significant changes" to my uterus - that's the only way they'll even consider it at MY age and with children. Get another opinion, but also have a frank talk with your insurance company (if you have any). My best piece of advice is try other alternatives such as massage therapy to help keep the adhesions from forming. The more surgeries you have, the more adhesions will form. My husband has been caught in that vicious cycle for the last 17 years due to ulcerative colitis. Keep praying because God will heal you. It just may not be in the ways that we think he should. Good luck!

While I understand the desire to consider this (believe me), please read carefully about the operation.

I do not believe that the doctor won't perform for insurance money. Doctors here perform more of these operations than in Europe.

Please recognize that this is a controversial issue. Read about side effects.


Please Google hysterectomy side effects and read carefully, all.

Oh...to follow up, I posted article about hysterectomy in a new thread.

Again Thank you all for giving me advice. And I will say this again.... I have literally spent around 80-100 hours on the computer, in the library and talking to doctors about the effects of a hysterectomy and what I might be getting into. And I am not one of those type of people that say that they have "done all the research" and really didn't. I have about 6 or 7 note books full of info that I have gotten from mutiple sources. And yes have read all the horror stories you can imagine. SO I know what I am getting into. I just wanted to see if there are people that are like me, who are waiting to get a second opinion and feel that this is the last resort. Which in my case, my husband, my doctor and I all feel that this is the last step. My doctor just wants another doctors opinion. So hopefully I will get some sort of answer, whether if it one I want to hear or one that I don't. I just want to know that I am not the only one out there who is in the same situation as I am in. Again Thank you for all your advice. And I encourage all to read my story/page before saying anything. I always make sure that I read people's pages first because it gives me so insight of what they have gone through and are currently going through. Thank you, and you all will be in my prayers.

GodWILLHealMe

Good luck, GWHM. I know we are all looking for the best possible resolutions. Please post followups, whatever you decide.

I would like to hear more stories, pros and cons.

I'm new at this (my first surgery is May 3), but my doctor has already agreed to give me a hysterectomy--I'm currently 26. We have been trying to get pregnant one last time, and he said he would give me a hysterectomy as early as 6 weeks after my baby is born. He said my age was not an issue--but only because I already had kids. During one of my worst cycles (and we were informed that it's possible I'm now infertile) I had decided that we were done--I said no matter what I didn't want more kids. But my hormones calmed down, my pain lessened up momentarily, and I realized I'd be sad if I didn't have one more. My advice is to just make sure you have really thought about not wanting kids--and make sure the decision is not made while you're in pain or feeling hopeless about your situation.