What is Encephalitis

Encephalitis is an acute inflammation of the brain, commonly caused by a viral infection. Sometimes, encephalitis can result from a bacterial infection, such as bacterial meningiti...

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HI im Jane IM 49yrs old and had enchepalitis that went into a coma in the summer of 2006 I am looking for friendship support advise hope to talk to someone take care love and peace jane ps my encephalitis was caused by herpes
Posted on 02/02/08, 08:02 pm
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Reply #1 - 02/05/08  1:51am
" Hi Jane,

My name is Ruth, and I too had Encephalitis years ago. I was also in a coma for 2 or 3 weeks. I would love to share and swap stories to get an understanding of this thing they call Encephalitis. "
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Reply #2 - 04/07/08  5:07am
" hi jane
My name is Tina. I too have or had encephalitis and not sure which type. I've just came across this site, and i thought that i was the only one, i am glad to see that i'm not and able to talk to someone that understands what we are going through.
take care and maybe we can talk about it. "
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Reply #3 - 06/10/08  11:58am
" Hi Janie, I am also 49 and had viral encephalitiis when i was 21. I also was in a coma and the residual effects of E reeked havock on my life - a living hell for years but there is hope and help. I am an old pro at E and seizures so I would love to talk with u and get to know u. Ruth is great - so please don't be shy about getting in touch with anyone that has had E cause we are willing & need to share also. God Bless, LadyEve (Deana) "
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Reply #4 - 09/19/08  9:02am
" Hell Janie,
My name is siena aka. twinky. 3 yrs ago I came down with Hashimotoes Encphalitis. Very rare. I pulled through with 12 hours left but the dr. figured it out and here I am. I am 38 (until Oct). :)
I would love to talk to you about E. It has changed my life so much and right now I am so angry about this. I cannot wait to meet. "
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Reply #5 - 10/28/08  12:15am
" Yeah we're here and I had this disease many years ago. I got rid of it. It came from a flu shot that I got and affected my Cerebellar or the brain stem. I couldn't walk straight, type right or see out of the extreme right corner of my eye because it was distorted. When I ate it felt like I was eating cotton balls. I finally got rid of it. There's lots more people here. If you want to compare notes I'll be glad to talk. galed "
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Reply #6 - 10/19/09  4:05pm
" Hi Jane, My name is Judith. I got Encephalitis in the summer of 2006 too, and nearly died. Mine was also from the herpes simplex virus. I am new to these types of message boards but I am hoping to find friends who can share ideas about how to overcome the frustrating and debilitating effects. I have always been an active, self sufficient, working mom all of my life and now find myself having to live with my kids because of my difficulties with short term memory. I'm hoping to find others who have learned to overcome the memory issues and lead a full life. I hope to hear from you and others. Thanks for starting this thread! "

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