What is Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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I recently found out that I have type VIII Ehlers-Danlos Syndrome. I also found out my 5 year old daughter has it as well or at least is showing symptoms of it. I have chronic pain that I am on a regular anti-inflamatory for and have lost all my teeth. My daughter has also lost many of her teeth and her perm are coming in bad. Along with this Syndrome I also have an auto immune disease called Grave's disease. So I am having a very rough time of it. Anyone have any advice?
Susan
Posted on 10/31/09, 02:10 am
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