What is Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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Alabama
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Hello all... if you dont mind me asking....does anyone on here live in or around Tuscaloosa, AL...I am thinking of starting a support group but I dont know if anyone around has EDS...Please PM me and let me know...thank you
Sarah Posted on 09/22/09, 02:09 pm |
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A support group sounds awesome!!! I live in Utah though--sorry! Have you ever looked on the ehlers danlos national foundation website (ednf.org), because they have different support groups in different areas? I don't know if they'd have one by you, but it's worth a shot to check. Hope you're doing well! 
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I had a really rough day at therapy but other than that i am good....i have looked but there isnt any around except for in GA and that is a long way away....i am gonna try to start one but i wanted to make sure that there are other people in Alabama with EDS...How are you
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