What is Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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Totally didn't expect to find this here. I have been dealing with EDS all my life. I was dx'ed at 18 months. I have Classical (from my mom) and Hypermobile (from my dad). I also adopted a daugther with Hypermobile. She's from Siberia so it's wild that we found her.
Posted on 09/19/09, 06:09 pm |
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Hello...I am 14 with EDS and I just found out that I have it....It is so awsome about your daughter...I am here if you need anyone to talk to...lots of luv your way...Sarah 
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