What is Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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14 years old :)
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Hello everyone....My name is Sarah and I have EDS....I have only been diagnosed with EDS for about a month...I am 14 years old and I am now home-schooled because my right wrist (i am right handed) is the worst of all of my joints. The doctors kept writing me out of school for tests and everything else....so I went from being a strait A student to missing most of the school year...Now I have to do all of my work on my laptop and I cant play sports like I used to....I havnt met anyone with the same problems I do and truthfully I am worried and I have no idea what to expect....so if anyone has any advice for me it would be much appreciated...thank yall for everything....Sarah
Posted on 09/18/09, 09:09 pm |
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Just hang in there hon. I have EDS, and I believe my 5 year old has it too. Just take the days as they cme, and protect your joints as much as you can. You can still have a life and friends. There are lots of things you can still do-focus on the good stuff as much as possible, and have fun-after all you're a kid, and fun is your job! 
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take care, enjoy life an surround yourself with friends who will support you an not copy your injuries or put you down (both has happened to me an it was not nice an thus i got rid of them fast). simply enjoy life! an it gets hard, very hard so i suggest talking about it when possible to your parents an doctors an friends an people on here. all helps.
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Thank yall...I have checked out ednf and it is cool...keep your head up no matter what..Lots of Love
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