What is Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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Looking for a Spanish Speaking Support Group
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Hi;
My sister in law needs to find a spanish speaking support group for EDS in the San Francisco Bay Area. She is 32 and has 2 children. Her 5 yr old daughter was diagnozed yesterday with EDS. If you know other families in the area who would like to be a part of a support group please let me know. Thanks Posted on 02/13/09, 11:02 am |
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There is a site called www.telability.org that has a full list of services (including many spanish speaking groups). I don't know if they have anything specifically related to EDS but it's worth a try!!! 
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