What is Ehlers-Danlos-Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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Friday November 27, 2009

Members in Need

Show stories in Members in Need
  • Journal Entry for April 30, 2008

    Wednesday, April 30, 2008

      I'M SO FRUSTRATED! I SAW MY DOC TODAY. SHE HAS DECIDED THAT SHE WANTS ME OFF OF ALL MY MEDS FOR FIBRO! APPARENTLY, THE NEURO SAID I NEEDED TO BE OFF OF ALL
    PAIN MEDS FOR PROPER EVALUATION OF MY CONDITION! THAT IS DEFINITELY NOT WHAT SHE SAID TO US! MY HUBBY HAS REQUESTED A COPY OF THE LETTER STATING THAT FACT!
    WHEN I SAID THAT I HAD BEEN DOING BETTER THAN I WAS A YEAR AGO, SHE SAID HOW W...

    3 Recommendations

    6 Comments

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  • the flu a sinus infection.... and two deaths in the family

    Thursday, January 29, 2009 | A Venting story

    just me venting =)
    its three am im tired i have a sinus infection and a mild flu .. and  after6 hours three pairs of pjs and one bath later she is finaly asleep... on the floor in the liveing room....
    it just really sucks she just got over a flu bug last week. she barely ate or drank last time it was all diarrhea that time this time its alot of puke she lost close to a pound last time im wo...

    1 Recommendation

    7 Comments

  • may you rest cousin duncan.

    Friday, June 6, 2008

    recently my young cousin 7 years old died in his sleep unexpectedly. everyone was being so dramatic and acting like it was to personaly upset them. i wantd to smack them all..
    so on face book they tell me to call them tho they have my number if they want to talk to me. they acted like it was life or death i personally called them. needless to say im not that close with them and only met this cou...

    2 Recommendations

    5 Comments

  • Having a really {{{BAD}}} Day!

    Tuesday, April 15, 2008 | A Venting story

                                  Sorry friends!! I cannot answer my messages today! I must go go go to bed!
    Please 4 give me?? Hugs to you all!! Prayers please????? Hugs, POMGIRL!! :0(

    1 Recommendation

    6 Comments

  • Journal Entry for September 14, 2008

    Sunday, September 14, 2008 | An Anxious story

     My oldest is sick again and i took her to the hospital where she was given a prescription for zantac for the pain in her belly but she does not want to take them because she does not want to become addicted even though i take the same thing and only when i need them can't tell her anything at al she knows everything is her idea and so she will suffer or take tylenol which is worse than ...

    1 Recommendation

    5 Comments


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