What is Ehlers-Danlos-Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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Friday November 27, 2009

Rambling Stories

  • First Entry

    Wednesday, June 4, 2008 | A Rambling story

    I can't garuntee that there will be any updates to follow.  Honestly, I don't even know who would be bothering to read this in all it's unimportance.
    I suppose one function could be to surve as a track log. 
    Morning Tiredness Level: 4
    Pains: Right Shoulder, Incoming Migraine, Throat Swelling.
    Still no word on our loan approval to purchase our first house, remaining a constant f...



    1 Recommendation

    1 Comment

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  • first entry

    Thursday, July 17, 2008 | A Rambling story

    So I just found this site at the suggestion of a friend. I know that we have a 50% chance of passing this thing onto our children. Well this will be carried on in our family all 4 of my children are exhibiting signs and symptoms. Our daughter had the collagen testing done since she has dislocated her hip so many times. Of course she came up positive. Our 3 boys have a wide range other than the la...

    1 Recommendation

  • been a while but things are going good sorta

    Saturday, August 30, 2008 | A Rambling story

    well ive been doing good off my meds its been over 2.5 montyhs since i started reduceing, and a month off... felt wonderful to start with off of them. but ive recently found out i have a mild thyroid issue, also have insulin resistance thats really hard to controll right now due to a systemic yeast infection. was taking large doses of vit c but messed up my ph ballance in turn messing up my bladd...

    1 Recommendation

    3 Comments

  • Just Down

    Tuesday, October 28, 2008 | A Rambling story

    It is getting harder and harder always to have a smile on and pretednd to be ok. I am so tired of you look ok so you should be ok. I am tired of taking a fist full of pills every day just to get through the pain. My husbond tries to understand but he is not in pain so he doesnt get it. I was always the motivated one in the house and now I am lucky if we go for walk with the dogs once a day. I can...

    1 Recommendation

    1 Comment

  • Feeling better

    Tuesday, November 4, 2008 | A Rambling story

    So my dad is doing ok. we are a week out and physicaly he is good. They say his memory will come back a bit. Thank God. And I am happily on Celexia new anti depressant. it seems to be working. Yeah. The kids were so cute on Haloween and well behaved. Things are back to being good.

    1 Recommendation

    2 Comments

  • Another week just ....GONE!

    Friday, May 29, 2009 | A Rambling story

    HI GUYS!
    I can't believe how fast time seems to fly lately...and it's not because I am so busy getting things done. In fact I have gotten very little done lately as like every one else I haven't been feeling well. It's probably Spring allergies (the trees are all blooming right now). I have felt like my head is stuffed, my breathing has been hard, I've (still) been sleeping way...

    1 Recommendation

    6 Comments

  • Journal Entry for June 10, 2009

    Wednesday, June 10, 2009 | A Rambling story

    well today i am super tired::)) haha again..i have been soo stressed out! there is so much drama in high school..i hate it..and i dont even cause the drama!! but some how i get caught up in the middle!! and the guys are all jerks,but its all right because i am one step closer to finding the right guy:) and i really do enjoy everyones support on here..ha but right now i am done with guys in hs...t...

    1 Recommendation

    1 Comment

  • my body is having a civil war with itself

    Tuesday, November 24, 2009 | A Rambling story

    I find myself suddenly considered 'disabled.'  It came on so quickly!  I knew it was getting worse, but this last week my condition has deteriorated rapidly.  I am 29 years old, but have the body of an 85 year old woman.  I have classic type Ehlers-Danlos Syndrome, sleep apnea, arthritis, occular migraines, and nerve damage.  I want so much to be able to do all th...

    1 Recommendation

  • Ah, life.

    Wednesday, November 25, 2009 | A Rambling story

    So much goes on in such a little bit of time. Sometimes I don't quite feel like dealing with it. But hey, what can you do, right?
    Everything seems to waffle, too. One minute, you're on top of the world. The next, you're the dirt under someone's shoe. Ooohh, the cosmos.
    Out of my 5 classes that I'm taking, I'll probably not get credit for one, I have a paper that is a week la...

    1 Recommendation


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