What is Ehlers-Danlos-Syndrome

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...

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Tuesday November 24, 2009

Frustrating Stories

  • Journal Entry for April 30, 2008

    Wednesday, April 30, 2008

      I'M SO FRUSTRATED! I SAW MY DOC TODAY. SHE HAS DECIDED THAT SHE WANTS ME OFF OF ALL MY MEDS FOR FIBRO! APPARENTLY, THE NEURO SAID I NEEDED TO BE OFF OF ALL
    PAIN MEDS FOR PROPER EVALUATION OF MY CONDITION! THAT IS DEFINITELY NOT WHAT SHE SAID TO US! MY HUBBY HAS REQUESTED A COPY OF THE LETTER STATING THAT FACT!
    WHEN I SAID THAT I HAD BEEN DOING BETTER THAN I WAS A YEAR AGO, SHE SAID HOW W...

    3 Recommendations

    6 Comments

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  • Today

    Saturday, August 30, 2008 | A Frustrating story

    Usually saturdays are my bingo nights, well my kids decided they wanted to go to the movies and they whined well not the youngest one but the oldest one has a way of manipulation that just kills me quickly.
    it starts as mom i want to go to the movie or what ever it is and then it carries on with well i want to see/do this so badly.
    then its well i did not want to force you to do what you did not wa...

    1 Recommendation

    2 Comments

  • AGAIN, TODAY OR SHOULD I SAY THIS MORNING

    Sunday, October 5, 2008 | A Frustrating story

     
    THIS MORNING AT 5:30 THE REAR WINDOW OF MY VAN WAS SMASHED OUT AND THIS TIME IT WAS A ROCK THAT WAS USED TO DO IT.
    i JUST GOT IT FIXED 8 DAYS AGO SO NOW I AM FACED AGAIN WITH THE FACT I MUST MAKE A CLAIM FOR THE WINDOW AND AGAIN PAY THE DEDUCTABLE OF 200.00
    I SAY NOW WHAT THE HELL AM I GOING TO DO I AM SO VERY VERY FRUSTRATED WITH ALL THIS CRAP THAT IS GOING ON BECAUSE I  TELL YOU I HAVE...


    1 Recommendation

    2 Comments

  • A New Worker! This ones a keeper!

    Friday, October 31, 2008 | A Frustrating story

    Happy Halloween!!!
    I miss all of you something awful! I'm breaking in a new healthcare worker and she's a dream! Unfortunately, everytime I start with someone new I tend to overdo it myself. I'm also a little worse due to the weather being colder and the arthritis flares along with everything else!  I pray everyday and night for each and everyone of you..for strength when weak, fa...

    1 Recommendation

    3 Comments

  • No Mri for me Thursday

    Thursday, November 13, 2008 | A Frustrating story

    Okay i chickened out of the Mri i know it is for the best and all but i just could not face it.
    The person who was going to take me had 50 other things to do and after the Mri too boot and i told him no way did i want to be dragged around and visiting people who i barely knew, when all i want is to go home and be relaxed i mean after all i was so freaked that i knew i would have a hard time dealin...

    1 Recommendation

    2 Comments

  • my week end

    Monday, December 1, 2008 | A Frustrating story

     
    Here goes i have not written for a while and while i have been busy i have thought lots about what to say here.
    First i did not get that car i looked at while it was a good price i could not afford everything it took to fix it.
    Second thing is i ended up not getting the other car right now either because the father of my children who i love with all my heart had a heart attack on Friday Morni...


    1 Recommendation

    2 Comments

  • TODAY AGAIN

    Saturday, January 31, 2009 | A Frustrating story

      I FINALLY FOUND OUT WHAT IS GOING ON WITH THE GIRLS DAD.
    HE HAS FOUND HIMSELF A WOMAN IN EDMONTON WHO WORKS FOR THE GOVERMENT AND HAS HER OWN CONDO, GOT TO LIKE THAT, HE  FOUND HER ON EHARMONY THE DATING SITE.
    HE NEVER TOLD ME I WAS TOLD BY A FRIEND WHO I STAYED WITH WHEN I WENT OUT THERE FOR HIM WHEN HE HAD HIS HEART ATTACK GO FIGURE.
    I THINK SHE WILL SEE SOON ENOUGH WHAT KIND OF A MANI...


    1 Recommendation

    2 Comments


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